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I have been following this thread on ALSTDI. Oral Sodium Chlorite - ALS Research & Treatments - ALS Forum They have attempted to duplicate the effects of NP001 in which TCDO (Sodium Chlorite) is the active ingredient in both WF10 and NP001. Pals are have mixed a solution and administering...

If you were a FALS family would you discourage your children from sports like football? We have the SOD1 gene mutation in our family and my sons are 2 and 4. My mom had the mutation but it remains to be seen if I do. It's quite possible that the sporadic form which has in some cases been...

Recently I feel compelled to go be tested for the SOD1 mutation. It has been identified as the cause of familial ALS in my family. Initially I was adamant I didn't want to know. lately I feel like I just have to know, its eating me up. I know that a positive test doesn't mean 100% I'll...

Hello my friends, is been a long time, I see some new faces. I have been absent for many months. I found myself in an ALS obsession that I needed a diversion from but sadly I am back as FALS struck again. Although it was so good to read some posts from all of you that despite my absensce I...

My mom has cases of formula left over. What should we do with it? She needed a prescription for it, so I didn't think it would be possible to just donate it somewhere. Say we could donate it, who would I call about it. It is the Jevic. I would be happy to give it to anyone on here for free...

ALS unfortunately runs in our family. My mom just passed from it about 6 weeks ago. I finally have stopped obsessing over her and her situation at least some, I now find myself over analyzing every muscle movement, every swallow, everything nonstop all day long. I wake up thinking about it...

Hello! I'm new to this forum, obviously. My mom first experienced ALS symptoms in July 08. She was diagnosed in Nov 08 and sadly passed away just two weeks ago in Mar 09 at the age of 51 only 4 months after diagnosis. I live in Oklahoma, but spent the last three months in Iowa taking care of...