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Baclofen Dear sral, I would say that I have benefitted although I won't be running any marathons anytime soon (lol). But seriously, I just had it implanted (installed, uploaded, whatever) in Dec. 2008. I get it refilled in April (with a big needle; in my stomach; ouch). Hopefully, things are...

Thank you. I'm checking into getting this test done. Alisa

Hi! I agree with you that doctor's are somewhat clueless about rare diseases like PLS. I wish that I had been more informed when I first started having symptoms (about 17years ago). The doctor's acted like it was none of my business about the EMG so I just know the final results and not the...

Hi! I don't have drooling. I sometimes wake up in the middle of the night and have trouble going back to sleep. As far as the incontinence goes, I had a baclofen pump implanted in December and that has eliminated that. That has also let me sleep more deeply and I don't have to get up in the...

Testing I'm thinking about having this testing done. I called the insurance company and they didn't know if it was covered, but they said some genetic tests were covered but just have to be preapproved. I have a doctor's appt. next month and I'll have a script written for it and then I'll...

Thank you, Caroline. Dawn

Pt Most physical therapist deal with sports injury patients. I am going to one now that is a stroke specialty center located in the hospital. I'm getting disillusioned by the whole thing because I'm not seeing great results. I have repeatedly asked my PT is I can cut the sessions from twice...

Hi! I'm new here let me give you a little history. I didn't have any one definitive test for PLS/HSP (hereiditary spastic paraplegia). The doctor's just ruled everything else out. Is this normal or is there a test? Also, my sister has something very similar to this. Although, none of the...

Hands My penmanship looks awful. I'm taking classes at a community college (most classes are on-line but "speech class" is live) and I am forced to write brief sentences and I'm doing o.k. I'm in a class with people who are about 20 years younger than me and they can write and walk...

This is the same story that I have. I've been going to PT in Knoxville but they don't know what to do for me other than excercise. My physical therapist keeps making me mad by continually telling me that I have weak muscle. Dah. I know. Have you had any experience with PT?