Search results for query: *

  • Users: DgtofTNfan
  • Content: Threads
  • Order by date
  1. DgtofTNfan

    CINI.org and Communication devices

    Were you guys already aware of this website? CINI.org (outdated site) "Founded by speech pathologists, people with ALS and family members, Communication Independence for the Neurologically Impaired (CINI) is the only not-for-profit organization solely devoted to improving the quality of life...
  2. DgtofTNfan

    Wheelchair Specifications

    A recent post on here indicated that a PALS had a power wheelchair however the seating system did not include some features that would have been beneficial for care. In another thread a member had mentioned looking at scooters and quickly learned from this great community to skip the scooter and...
  3. DgtofTNfan

    Caring Connections Website

    Found this website when working with someone with questions regarding Advanced Directives. I was not sure if you guys were aware so I thought I would post. Caring Info - Planning Ahead Caring Connections has quite a bit of information for Advanced Directives including printable documents by...
  4. DgtofTNfan

    Care Connection and Lotsa Helping Hands programs

    Has anyone used the Care Connection program and/or Lotsa Helping hands website tool by the ALS Association? I went to an ALS Assoc breakfast yesterday and both were highlighted. The Care Connection program is a program that includes a network of volunteers from the community that helps the...
  5. DgtofTNfan

    My Dad

    My dear sweet father passed away on Saturday, August 22nd. My mother, brother and sister and I were with him when he left his battle weary body and rose to a better place. As heart breaking as it was we had to smile shortly after his passing as we knew he was popping a top on a beer and saying...
  6. DgtofTNfan

    My Dad is in the hospital.

    My Dad was admitted to the hospital last Wed night. He had a coughing spell that caused him to vomit and he apparently aspirated at the time. He had a fever within 2 hrs of the episode. We called the doc and he said to send him to the ER. The chest X-ray indicated early pneumonia. The doc noted...
  7. DgtofTNfan

    What Vitamins do you take?

    I am curious about the use of vitamins and wanted to get other PALS/CALS thoughts. Do you take any vitamins that you have found helpful or at least thought might have contributed to a slowing of the progression? If not an impact on the ALS maybe a vitamin that has helped increase energy...
  8. DgtofTNfan

    Diarrhea and tube feeds

    I am hoping you guys can offer some ideas. My Dad has had his PEG for about a month. He continues to have diarrhea. We have been working with the dietitian from the ALS clinic and his PCP. He was recently on IV abx and they have run the course and have been ruled out as well as a bowel...
  9. DgtofTNfan

    My Dad's story...

    My Dad was diagnosed last Tues with bulbar onset ALS. In Feb 2008 he started coughing. At first his symptoms were treated as if he had a cold, then laryngitis, then there was a question of his significant history of reflux aggravating his larynx and throat and he was put on voice rest. VFSS...
  10. DgtofTNfan

    Hi - new member with questions.

    My dad is 69yo and has had progressive coughing and swallowing problems for over a year. He has lost a great deal of weight - 20+ pounds. His symptoms have progressed to include slurred speech and poor breath support. His PCP kept treating him for a cold and thought that his history of severe...
Back
Top