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    What to avoid in the hospital?

    My mother (71 yrs old diagnosed 3/09 with bulbar) was admitted to the hospital a week ago. She was gasping for breath while wearing her bi-pap. The paramedics put her on oxygen. the respiratory personnel at the ER did also... we were concerned about the use of Oxygen, as she hadn't used it...
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    sticky mucas like glue

    Hi Barry, Thank you for the great information. I do like to make my list of what to inquire about and discuss when we go for clinic visits. I've saved the links you provided and printed the pages to take along. So much to learn to attempt keeping ahead of her needs. The electric suction...
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    sticky mucas like glue

    Hi Barry, At present, she does not have any type of suction device. She has both gooey stuff (especially in the night and morning) and throughout the day seems to be excess drool. We believe that Mom is past the point where they would have recommended a vent and for certain the PEG and she...
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    sticky mucas like glue

    Thank you Barry, the information is very helpful. We're not certain if at this point we'd be better off with the radiation or to get her one of those hand held suction devices (not sure of the tech term). Mom is 71 with bulbar, not doing a PEG or vent and condition is getting pretty bad these...
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    sticky mucas like glue

    Hi Barry, We believe it is time for our mother to have the radiation treatment to her saliva glands - can you giv eme more information about that so I know what to ask or know before our next clinic visit.
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    lung function

    Thank you for the responses. I had also heard that oxygen was not a good idea, my own logic says that they could get too much easily since they do not have the ability to process it properly (?) Mom is 71 years old and truly is miserable and feeling very trapped in her body at this point...
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    lung function

    Similar to Jeanne, my mother was diagnosed in March 2009 and is rapidly progressing. In March her lung capacity was 43%, July 1st it was 30% and now about 20%. She has had the Bi-Pap since March and uses it only at night. She struggles all day every day with breathing, but is stubborn beyond...
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    Need help with planning a trip to Disney World

    Greetings, Disney World is my favorite vacation of all time. Here's what I know and recommend... Book through AAA and opt for the trip insurance. If there would be a medical problem or lost luggage, delays, etc... you would be compensated or not out your money. Very important on a trip...
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    Family member paid as caregiver?

    Thank you for the replies... unfortunately, Mom does not have a long term care policy but does have Medicare and a supplement which says it covers home health care... I'll be calling the Baltimore office in the morning as well as Medicare and her supplement company. I do so appreciate the...
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    Family member paid as caregiver?

    Greetings everyone, I had someone mention that some insurances will pay a family member as the caregiver as it keeps insurance costs down by avoiding the nursing home care? Do any of you know of such a thing? My brother who lives with our parents is serving as our mothers primary caregiver...
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