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  1. L

    Mama is gone!

    after 3 weeks unconcious in de hospital, mama endly lost her battle with this terrible disease. She passed away 18 oclock 2 sept with an age of 71. her symptom began on end of 2006, she had bulbar ALS. 2008, in beijing she is diagx ALS. 2009 march she got her Peg. wij feel quiet sad is dat...
  2. L

    mum is in hospital unconcious,what to do?

    hi everybody, My mum is in hospital "intensive care"now here in china. It happend like this: first she complaind that she couldnot breath like she did all the time in de past 5 month. but this time she felt that she only breath out,could not breath in. so we sent her to the hospital and then...
  3. L

    urgent question about "trache and vent "

    hello everyone, my mother is in the hospital now.my heart is bleeding! she cannot breath, very very difficult! the doctor here want to make a hole in her throat, but we dont know if we should agree that or not. bcos once she get her throat opened, she has to stay in de hospital for the rest...
  4. L

    Has all pals with chalk nail?

    :confused::confused: ALL three person i know with ALS, has chalk nail . is chalk nail the cause of ALS?
  5. L

    Is there a tube which can put in de throad to help mum?

    mum has Bulbar ALS. because her tougue is useless .she feels Her tongue blocked in her throad, that is why she cannot breath. Is there a kind of Tube that can put in the throad , to help her to breathe? She still can walk, i dont want her to die just because of Bulbar and cannot breathe...
  6. L

    is there treatment for dry throat and losing salivia?

    Dear al, Here I am again to ask help! Mum has diagx balbar onset, she is on feeding Tube a week ago. She has bipap. she lose salivia continiously. she complains so much that her throat is very dry, that I must do something for her. how to reduce salivia for Mum ? is there any treatment...
  7. L

    what food for Peg Tube?

    Hello everyone . Mum is on feeding Tube for a week. but the past week she got nutrition-water(i dont know the english words for this ) from the hospital. the following week , we are going to feed her real food。 we are in china. There is no care center in china for ALS. I hv bought Stuff-mixer...
  8. L

    Mum's EMG shows no prograssive

    my mother's first EMG was done in Aug 2008. she just have a new EMG done. De doctor said :compare to the first time in Aug 2008, EMG shows no prograssive. At one side , I am glad for that. at another side, i feel maybe the doctor digx her wrong? maybe not ALS? thanks for reading linda
  9. L

    how to wear Bipap 24hours a day?

    since i didnot find the place for battery on the Bipap,I guess the Bipap is only on electricity. How do you wear it 24 hours a day? If you go somewhere ,what dan ? I bought one from US, that is Respironics,M-series. automatic with Humidifier. thank you! LInda
  10. L

    stem cell treatment for ALS?

    i was told that maybe "stem cell treatment "maybe will help my poor mum for her ALS. anybody has any idea about this operation? i am getting crazy ! hope there is a cure for my mum. thanks for everybody Linda
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