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  1. J

    Va benefits

    In my situation, the PVA was crucial in getting me into the VA system. Once in, they scheduled an appointment with a VA neurologist. Once the VA neuro confirmed I had ALS, the flood gate of services and equipment and medical came pouring in. Get seen by a VA neuro, ASAP!
  2. J

    Skin test may predict Lou Gehrig's disease

    Skin elasticity? My deltoids, traps, biceps, and triceps are all atrophied to the point that it looks like my skin is stretched over a skeleton. Without all that muscle underneath the skin, no wonder elasticity is compromised. BTW, my skin is the same as it's always been. When people meet me for...
  3. J

    Researchers taking second look at drug

    Saw a news teaser on CBS yesterday. Curic is doing a segment on a "possible cure" for ALS. It will air Monday night. I find it very suspect, and a mere ploy for ratings. If there was a "possible cure", we'd know about it.
  4. J

    Anyone had a spouse leave?

    -------------------------------------------------------------------------------- Like the saying "adversity doesn't build character, it reveals it". I'm finding that out the hard way with my wife. Since I am 100% service connected, I receive home health care for 3 hrs a day, 5 days a week...
  5. J

    Caregiver taken for Granted!

    Like the saying "adversity doesn't build character, it reveals it". I'm finding that out the hard way with my wife. Since I am 100% service connected, I receive home health care for 3 hrs a day, 5 days a week (bathing, shaving, and feeding). I pay out-of-pocket for a CNA that puts me in bed...
  6. J

    Where in your body does ALS strike first

    Easy, the motor neurons are affected first.
  7. J

    Sexuality in ALS: Online Research Study

    I took the survey in March. As far as sex with my wife - 5 times in 7 months, but she was rarely the initiator, even when I was healthy. Yeah, "it" still works. Unfortunately, my wife is not coping very well with my disease, emotionally, and she is sucking the remaining life out of me. I...
  8. J

    Amalgam/mercury and ALS - I am sure of a correlation

    there are countless "theories" as to what causes ALS, but none have been proven. When research proves, conclusively, what causes ALS, then we will find a treatment or cure. Until then, it's all speculation.
  9. J

    gained 4 pounds

    Went to the VA friday for my annual physical. when they weighed me, i weighed 172, up 4lbs from 8 months ago. The docs were baffled. I love it!
  10. J

    vote if you are a military?

    Army vet the PVA was instrumental in accelerating the process of getting "in" the VA system. Once i got examined by a VA neurologist, everything moved at lightspeed. I got the powerchair, computer/speech device, aid and attendance (3 hrs/day, 5 days/week), money to help pay for a wheelchair...
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