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I'm an "old one" in this ALS world. I've been living with this crazy disease now for over 11 years. It all started in 2007 with my left foot while speed walking my neighborhood. It stayed in my lower limbs until about 2013ish, but now I'm just getting to the point I can not type well, feed...

I get what you're saying about being sensitive to any abnormalties... I only notice an occasional cramp in my other leg or foot at night. Though I tend to micromanage anything that comes up (am I swallowing right today? are my fingers/toes moving fast?). But, so far everything else is normal...

Hi Tom, I don't know if your dx is still Monomelic Amyotrophy, but I had this dx since January 2010. I've had progressive left leg weakness for about 2 1/2 years, but it seems like it has leveled off ... though it's sometimes hard to judge due to muscle atrophy in my quad. Loss started in my...

Hi Peg! So funny ... I'd forgotten about this site! I think more is communicated on the brain talk site ... though before your recent post there was quite a lull. I also sometimes go to neurotalk, but there isn't a forum for MMN (it's just in general PN) so it's hard to follow the thread...

Thanks all for your encouraging words. No change after 7 treatments, but from what I've read this is can take a few weeks or months. Waiting "patiently" :?

This website has been so helpful for me in preparing for my first IVIG treatment tomorrow morning that I wanted to write a bit of my story hoping it may be helpful to someone else. My symptoms started about a year ago, when I was 39, as I was "speed walking" around our neighborhood. My leg...