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  1. M

    How to get MND without really trying

    Hi, Hope you all had a nice holiday. I have had two visits from Dr Bower when he visited Tasmania. Nice Bloke. Just comfirmed what all the other Doctors had found. Had a trip to Palliative Care Hospital due to severe breathing problems but I now seem to have this controlled. Basically I am now...
  2. M

    How to get MND without really trying

    I finally have my 4 wheel drive 5 speed wheelchair. It is a godsend. I can no longer walk more than about 5 paces with sticks. Still OK behind my walker for 20 metres or so before tiring. I can go all day in the wheelchair. I have rigged up a device so I can collect the 70 litre garbage wheelie...
  3. M

    How to get MND without really trying

    Unfortunately for me all five Doctors seen up to date have all come to the same conclusion, so I must assume they are all correct in their diagnostic findings. Indications to me is that if I was to see it out till xmas it would prove to be a real surprise to them all. None have said outright...
  4. M

    How to get MND without really trying

    I was just reading a post in relation to VA in US on this forum. Down here, I had to apply to Dept of Vet Affairs and provide documentation in relation to proving my MND was related to War Service in Vietnam. The reason I was required to do this is that if I did not I would have had to buy my...
  5. M

    How to get MND without really trying

    To Doris Little. Thank you. I have an appointment with your Dr down in Tassie on Monday. Had a visit from Jennene last week as well. Nice lot of people you have over that way. The Local Palliative care Dr and advocate visited me last week for a 3 hour"getting to know you". They were most...
  6. M

    How to get MND without really trying

    A further update on my condition. My neurologist put 4 needles in my legs yesterday. One at a time they were connected to a machine. Pulled them out then bluntly told me to go and enjoy what little time I have left. Nothing more he could do for me. Dont make another appointment as you will dead...
  7. M

    Lack of hope...

    Hi mate, Thank your lucky stars you are still able to do all you can do after all this time. Make sure you enjoy every day as you dont know when the symptoms start progressing very quickly.
  8. M

    How to get MND without really trying

    I am being treated by Drs here in Tassie as I am unable to fly to the mainland. I think the chemist has got the message and will order them prior to date being required in future.Dont know how long they will be needed the speed this thing is progressing. I am pretty lucky as, although I am not a...
  9. M

    How to get MND without really trying

    1 Feb update. I am now having some trouble swallowing some foods and voice is now croaky. I cant believe how fast this disease is progressing. My wife went for a Ritulek prescription fill yesterday only to be told. "There appears to be none available in Tasmania so we will get some for you from...
  10. M

    Muscle Biopsy

    Hi mate, I can only assume it is a different procedure down here in Tasmania. I had a biopsy under general anethesia. It was done about 6 inches up from my knee on the outer side. The cut was approx 3 inches long and I was let out of hospital 2 hours later. I was in absolute agony for over a...
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