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  1. Craig Mattice

    Diagnosis Netherworld Again!

    Just received and read my neuro's notes from my evaluation visit. Now HSP is "suspect" and we may have in the "differential," meaning mix of conditions to consider, spinocerebellar atrophy. As posted in another thread, I'm not willing nor in a position to fork out $1,000 for a $7,000 genetic...
  2. Craig Mattice

    You Want What for a Genetic Marker Test?

    A quick update. My neuro wished that I have them look into my new insurance company about paying for an Athenia genetic marker test to confirm or rule out Hereditary Spastic Paraplegia. After waiting a month, I received a call from his office. The secretary has gotten a big run around and a...
    • Craig Mattice
    • Thread
    • advice atheniatesting children cost disability finger genetic geneticmarker hsp insurance kids money paraplegia stupid symptoms test testing update
    • Replies: 3
    • Forum: Primary lateral sclerosis
  3. Craig Mattice

    Oh Great! Here we go again.....

    Why am I not surprised? I was asked by my excellent PCP to see a "real neuro MD" rather than the neuro adult NP i've been seeing since '04. I complied, my NP was not surprised and because my case is so complicated I was assigned a "real neuro MD." My first visit to him was on Thursday this...
    • Craig Mattice
    • Thread
    • chronic illness confused cost cure diagnosis genetic hsp insurance kids neurologist paraplegia symptoms test travel treatment work
    • Replies: 5
    • Forum: Primary lateral sclerosis
  4. Craig Mattice

    Physical Therapy, Not what it's cracked up to be.

    I was release last Monday from in-home to outpatient physical therapy. I went to the first session and they spent an hour and 15 minutes with me for the initial evaluation and exercise regiment. I was impressed and excited as to what this can do for me. Fast forward to Thursday, yesterday...
    • Craig Mattice
    • Thread
    • back brain disability exercise health hsp ice immediately physical therapy questions social security stroke survey therapy
    • Replies: 27
    • Forum: Primary lateral sclerosis
  5. Craig Mattice

    Diagnosed HSP, Sister to PLS Disease

    Well, my situation is a tad different than some people in this forum. I am home bound due to total disability from Hereditary Spastic Paraplegia or HSP. It is a serious deteriorating motor neuron disease that has no treatment or cure and only continues to get worse in degeneration of the...
    • Craig Mattice
    • Thread
    • als craig mattice cure diagnosed diagnosis disability free hope hsp ice motivational motor neuron disease paraplegia pls progression questions social security stroke testing treatment update
    • Replies: 6
    • Forum: Primary lateral sclerosis
  6. Craig Mattice

    Found this Forum by Referral of Existing Member

    Well, my situation is a tad different than some people in this forum. I am home bound due to total disability from Hereditary Spastic Paraplegia or HSP. It is a serious deteriorating motor neuron disease that has no treatment or cure and only continues to get worse in degeneration of the...
    • Craig Mattice
    • Thread
    • als craig mattice cure diagnosed diagnosis disability free hope hsp ice motor neuron disease movtivation paraplegia progression questions social security stroke testing treatment update
    • Replies: 6
    • Forum: New members
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