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  • Users: Lisa Lane
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  1. L

    HELP with new symptoms

    I started having symptoms in Oct. 05, officially DX's in Mar. 06. It started in my leg and now both legs are involved and now my right arm is getting weaker. For about 3 weeks now I have been having sensory symptoms. My face and my head feel numb, by legs and feet feel numb and so does my...
  2. L

    Question about heat

    I have been using a heating pad at night on my arm and it seems to help. It seems to me that I read somewhere that heat is not good for ALS. Does anyone know? We have had a few days of cooler weather and if I get cold my legs cramp up like crazy? I am thinking about getting an electric...
  3. L

    Fasciculations

    Hi everyone, I have a question about Fasciculations. For a while they stopped. But now I feel like popcorn is going off all over my body. I thought I read that they are maybe a sign of a good thing. Does anyone know? Lisa
  4. L

    Rilutek

    I have decided to start Rilutek. Do most PALS take it? If so have you had complications, or have you noticed a difference? I would love any input on this drug.
  5. L

    How fast does ALS progress?

    I started with foot drop in Oct 05. In Jan.06 I was still walking, hiking and swimming. In March 06 I got my DX. In May I was still walking, but with a walker because I started falling a lot. Now I am in a scooter because walking is just to hard. My right arm and hand and getting weaker and...
  6. L

    Handicapped Accessiblity

    Hello Everyone, I am new to the world of the "Handicapped" and boy does it suck! I have a degree in Special Education and I have been aware of handicap accessibility for a long time, but I have never had to live it. Doors, bathrooms, parking areas, elevators are not handicapped friendly...
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