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i got rid of all the ALS equipment the day after mum died. I wanted to forget ALS and just remember mum. The nurses were good and came for it the day after her funeral. We had the inter-floor lift pulled out the following wednesday. the house was so quiet; no one expected, no caregivers to come...

Thank you again for your reply - and I get what you're saying. I am just having such a hard time 'switching off'. I do think that I am struggling to find the relevance or importance of my work and think perhaps it is time for a change - that could be a big part of the problem, really. I am...

I feel like I'm just going through the motions too most days. But I am thankful that my mum and dad worked hard and that I don't have any financial worries, I own a house that will always be mine with no mortgage or much debt to speak of. I am thankful for my horses (I have 4) - and especially...

Hi Laurie - thanks for taking the time to reply to me. If you have suffered a similar loss in a similar time frame and still keep up to date with ALS forums, I suspect you will understand what I mean if I describe the anxiety. I think for so long ALS was my life - 5 years- as well as the...

... and I still miss my mum everyday. I still cry when I think of what she went through. I still feel so sad that there's still no cure. Just this week I had to take time off work as I fell back into a deep place of anxiety. I just miss her so much and I am considering returning to...

My darling mum lost the battle with als/MND today, almost 5 years to the day since her diagnosis. She was 55 years old. I still feel that the suffering and pain that she went through was not the full story... So much she held apart from us, to protect us, she was still a mother to the very end...

Hullo graham… thank you for your very passionate and lovely message. To be honest, I thought this journey would get easier… for me as a CALS it has gotten harder. I said I would fight for her, but I realise these last few months I have been fighting against her and we’re losing the battle and...

hello vickim... i think i will go and speak to my doctor about getting some antidepressants and sedatives if i am to endure this next part, these next months. i feel she is done with life. it holds nothing else for her. i always knew she was terminally ill, but i never thought of her being dead...

you look beautiful danijela!