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The last several weeks have revealed a few things I really don't understand or accept. 1. You can refuse a Bipap. 2. You can disconnect a Bipap. 3. You can refuse a ventilator. 4. You can have a DNR order. 5. You can refuse to eat. 6. You can refuse antibiotics if you have pneumonia. 7...

I want to appologize for my Blog entry that upset most people, I have deleted it. What I was trying to do is reinforce the statement I always use - ALS does not have to be fatal. It is not necessarily an automatic death sentence. If you have the support and provision to be cared for you can...

I want to encourage all CALS to not lose the love you once had for your PALS. Once you become a caregiver it seems to be easy to take on that roll and not love you PALS the way you used to. To not hug them, kiss them or have any physical contact. Remember that your PALS is still the same...

Here is a site I have been impressed with for quite awhile now. This person has high calorie recipes for anyone on a PEG (feeding tube). It has been posted before but because we have so many new people I thought it might be beneficial. Lucy's Homemade Food Recipes for Feeding Tubes, Real Food...

Sequoia just informed me of this article. Many of us are well aware of this procedure and some have even received it. But here is a recent update. Diaphragm Pacing System Awaiting FDA Approval for ALS | MDA/ALS Newsmagazine

The National ALS Registry is Here! All People with ALS Can Enroll in the Registry TODAY Dear Friend, The ALS Association is thrilled to announce that the National ALS Registry is now fully operational! Every single person with ALS across the country can begin enrolling in the Registry today...

I know that there are not many PALS that are as advanced as I am but thought I would post what happens in my day anyway. Someone might find it interesting or helpful. I did it to give to my caregivers. Procedures Is it at all helpful to anyone? :smile::smile::smile:

There are a lot of threads that have pertinent and excellent information for people who are concerned they might have ALS. Here is an index of excellent reading, I suggest, if you are new to the forum, that you read through these before posting a question. If you are new to the forum and...

All I can say is that David must have thought there was something in the link that he thought inappropriate. Sorry, but I don't have any other insight than that. If you want you can PM him and ask.

I thought this would be a good compliment to the I hate it when .....Thread. I love it when .....someone comes to visit!