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My wife and I were discussing this subject last night. We do not know how we will handle this if the road takes us to this point. Here is the concern. I can no longer speak. My right arm and leg are very weak. What if down the road I loose 100% use of both of my arms/hands. Lets say I am in...

In the past couple of weeks I have noticed 2 or 3 times when I woke up from an afternoon nap in my recliner I would feel a lite headache accross the front of my head. It goea away in a few minutes. My lungs are weak now and I was just wondering if during the nap if my breathing was not strong...

Hello, I have been suffeing with this dry mouth for a few months, but it is getting worse now. Can you imagine putting you finger on the roof of your mouth and it feeling like a dry sheet of sand paper? Also my tongue feels like a block of very course sand stone. Even some my gums are as...

In the past few weeks I have noticed that my neck muscles are sore and kind of stiff. When I go to turn my head it kind of hurts like a strained muscle. I also think my upward motion of my head is not quite as far as normal. I have also noticed that my neck muscles are getting tired when I do...

Do you have consistant constipation like I did? If so, check out this product. I started using the fiber supplement called Benefiber about a month ago. I got it at Wal Mart. I take 3 tablespoons per day via my feeding tube. This is a non thickening powder that has solved my constipation problem...

I have just started using my PEG tube with ensure in the last few weeks. The question I have is being that I am mostly a liquid diet, can that be the cause of constipation problems I am experiencing? I do eat a few food items but not much. I consume 4 cans of ensure plus each day. Any info you...

I have been up most of the night tonight due to having problems with getting the air out of my lungs without these aggravating weird sounds coming from my throat. At times there seems to be resistance to the air leaving my lungs. Is this the vocal cords closing up that are creating the sounds...

We are adding a new bathroom to our house to address my needs down the road. We want this bathroom to be completely handicap accessible. Can anyone give the the correct specifications of how to properly design this room? Any info is much appreciated. Rick

I know this is weird, but I was just curious how common is one of my symptioms. Here it is: Sometimes when I go to take a sip of any liquid - nothing happens! The liquid just sits there against my lips and tongue. It may stay that way for a few seconds then WHAM! My tongue will allow the liquid...

I am ready to have a feeding tube. I went to a GI doctor and all he would consider installing is what is called a PEG tube. I don't want this type due to the fact that I am still able to be up and active and I do not want that long 10" tube pushing out on my shirt. (My ALS affected area is with...