Search results for query: *

  • Users: CRF8
  • Content: Threads
  • Order by date
  1. CRF8

    Dodge wheelchair van for sale----SOLD

    2008 Dodge Caravan SXT, silver- 3.8 V6; AMFM CD MP3 radio, power everything including rear & side doors. EXCELLENT condition the rear load ramp itself is manual but easy & smooth, fit permobil 300 with room to spare, Qstraint lockdown, recent service, still some warranty remaining, new...
  2. CRF8

    MVV vs. FVC

    just came from pulmonary her FVC is 94%, which considering the ALS is very good in my opinion MVV is low at 44% they said she doesn't need exercises or medicine at this time for beathing. what is the MVV mean?, I googled it , still dont understand why it would be low, but FVC is ok
  3. CRF8

    toe curling

    my wife's toes are starting to curl & she cant wear sandals of any kind, the least of our worries . I try to stretch them out to avoid being permentaly bent. Has anyyone tried the pads that go on your toes to avoid this. She can wear at night. I doubt they could be worn with shoes. Yes, I have...
  4. CRF8

    helping research

    my wife, her sister & I recently submitted blood samples & a survey related to ALS research. If anyone else would like to donate, here's the info... -- Sandra Donkervoort, MS Genetic Counselor Neuromuscular Disorders Program [email protected] Northwestern University Feinberg...
  5. CRF8

    TENS or EMS

    anyone tried these? quote from sales webpage below: The EMS unit works by stimulating muscles with tiny electric impulses. These electronic muscle stimulation impulses travel to the body from the EMS unit via electrode pads. Timers on the electronic muscle stimulation machine rhythmically...
  6. CRF8

    how up to date are ALS websites

    I have noted a distressing fact. Many webpages referring to ALS etc., list clinical and drug trials. AAll of them are outdated in their listings. Trials that should be over with are still listed. Some websites don't even have anything newer than 2005. Just an observation. Does anyone know the...
  7. CRF8

    DONATION to ALS research

    maybe this isn't the right specific board for this but here goes: my wife is recently diagnosed with probable ALS not having been ruined yet financially, I would like to make a small donation to the ALS issue, specifically research. does anyone have any comments on which charities are legit...
Back
Top