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  1. P

    No sleeping pills are working

    hi Everyone, My husband (diagnosed January 2009 with slow progression bulbar onset ALS) has literally not slept in over a month and a half. Nothing the doctors give him works - Ativan, Remeron, Elavil, Lyrica, Apo-amitriptyline, Imovane, Zyprexa, Apo-oxazepam. He will try Valium (which I...
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    Regarding Pseudo Bulbar Palsy,

    Does anyone know if Pseudo Bulbar Palsy HAS to present with emotional lability? I've had three different responses from three neuros. Thanks, Perplexed
  3. P

    Husband just diagnosed today - what can I help him with from those who've been there?

    Hi, Any of you who read my post on "Do I have ALS" know my husband got a diagnosis today of Bulbar onset early ALS (possible on the chart), slow progression. The doctor said she was "without a doubt sure" this was the correct diagnosis but we are free to get a second opinion. We are both in...
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    Husband got Dx this morning - Early ALS Bulbar onset, slow progression

    Hi Everyone, Terrible day as you all know from experience. My husband was diagnosed today with early onset bulbar ALS, slow progression. The neuro wants to do another EMG (his have been clean so far) in 6 months, encourages a 2nd opinion, wants him to start Rilutek and a clinical trial of...
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    What's the difference between Progressive Bulbar Palsy and Pseudo Bulbar Palsy?

    I've keyed this in various places - anyone know? Thx, perplexed (and frustrated, tired, in denial, shock - you name it)
  6. P

    Dr. reasonably convinced it's ALS despite clean EMGS

    New from our doctor from the neuro who STILL hasn't called back since the EMG Jan. 16th: The neuro told our family doctor that despite the clean single-fiber EMG, she is "reasonably convinced" this is ALS given clinical symptoms of saliva and swallowing difficulties. It is hard as she hasn't...
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    Can dehydration or medication cause minimal hand tremors?

    My husband is still undiagnosed - had 2 clean EMGs but severe swallowing and saliva-pooling problems. No muscle weakness or atrophy, negative Babinski. My question is this; this morning I noticed his right hand trembling slightly. Is this a symptom to report to the doctor (who doesn't call...
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    Should EMGs be done on both sides of the body?

    The more I read, the more amazed I am how incredibly well-informed so many of you are, and how many more questions I have. I just read on the link about EMGs that if an EMG is normal on one side, it should be done on the other side. Do you all concur with this? Did your neuros do that? My...
  9. P

    Can a clean single fiber EMG become abnormal with progression?

    Just wondering if a clean EMG means anything definitive or if it can change with time? Thanks so much.
  10. P

    2nd single fiber EMG and tongue EMG normal - BUT

    Hi Everyone, More confused but par for the course, right? My husband had a second single-fiber EMG and a tongue EMG today - both were normal. BUT - the doctors found his tongue muscle is weak and one reflex is brisk. When they told him to stick out his tongue, it goes sideways a little...
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