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    ALS symptoms not "normal"

    To Yankeesgrl, As someone whose husband was misdiagnosed with ALS for five long months, during which the cancer he did have progressed to stage IV, I urge you and everyone who has an ambiguous situation to get more opinions outside the institution and the specialty field. This last is possibly...
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    Husband got Dx this morning - Early ALS Bulbar onset, slow progression

    Re: Husband got ALS diagnosis this morning - Early ALS Bulbar onset, slow progression To Everyone who wrote me, I just found this forum again after wiping out my OS to get Windows 7. Thank you all so much for everything. I don't know if this will find you all, but to recap: it's been almost...
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    Dear Beth, I'm only now back on line as I wiped out my operating system when I installed Windows...

    Dear Beth, I'm only now back on line as I wiped out my operating system when I installed Windows 7, didn't copy email history, and only just refound this link. I just wrote Rose, and don't recall how this works, if you can read that conversation or not. Don't want to repeat everything, just to...
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    Ever Heard of Going to the Doc too Soon?

    Hi Wright I haven't posted in a while (if you read recent threads you know why) but I just happened on your posting and wanted to comment. I agree with you 100% in wondering why people seem determined to find they have ALS in the face of medical disagreement. Having said that however and...
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    Your Doctor Is Not God

    Absolutely, QUESTION, QUESTION, QUESTION! Craig and Rose, you are 100% correct to stick to your (respective) guns and question, nicely but firmly, if you feel you need or want more information from your doctor, if there is anything that seems unclear or confusing, or if you disagree or would...
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    ALS symptoms not "normal"

    Also unsure about EMGs for MG and ALS Hi Again, There are others much more knowledgeable than I on this site (andoff it) but I will say for what it's worth that my husband's clean EMG resulted in the neurologist saying that MG would have shown up on it and that the diagnosed of ALS remained...
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    ALS symptoms not "normal"

    Again, I'm not last word on this but.... I would ask (and do your own research) if muscle and nerve biopsies are tests they plan on doing to cement their diagnosed of ALS. Secondly, (and again my caveat), if the EMG turned up signs of MG, does that not point to MG and away from ALS? Thirdly, I...
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    ALS symptoms not "normal"

    Definitely QUESTION QUESTION QUESTION Hi Yankeesgrl, I don't have concrete medical facts to contribute except this: get second and third opinions whenever there is confusion or atypical presentation. I don't want to bore you with someone else's history, but my husband was misdiagnosed with ALS...
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    Thanks so much, Beth.

    Thanks so much, Beth.
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    Hi Beth, You had a very helpful thread about PEG tubes. I can't seem to relocate it; can you...

    Hi Beth, You had a very helpful thread about PEG tubes. I can't seem to relocate it; can you direct me? My husband is having one tomorrow and I want to explain things to my daughter. Thanks so much, Erica
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