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Hi everyone - have not posted in a while but have been keeping up with everyone. Over the last few months I've been able to control my fears at a manageable level and life has been good, even with progressing symptoms. As a quick update, my level of weakness has progressed some, muscle shaking...

Wow! Do we finally have a face with a name? Or did you just select a random pic of somebody and stick it on your avatar?:lol::lol::lol:

This is a difficult thing to explain so be patient with me. Recently I am having some balance or coordination issues, especially on standing or getting up from lying down. It seems as if the crazy movement of muscles in my head and face is causing this. Those muscles move around quite often...

This might get long-winded - apologies up front... Went to Emory yesterday to follow up with the specialist and an EMG. The NCV/EMG was first, and I had two neurologists working on me. One was in training, but the other was tremendous and appeared very competent and made sure everything was...

I went to a new PCP today since my long-time doc is leaving town. I explained some of the neuro stuff going on and asked him to check my reflexes. I've never been told I have brisk reflexes and they have never felt that way. I had a diminished reflex in my foot. He said and I agree it probably...

Seems like the forum has changed - at least on my PC. How the heck do you check your reputation? Not sure I want to know.:lol:

I hope this is the right place for this question. I am un diagnosed'ed for my neuromuscular stuff going on. I had been on a statin for several years for cholesterol management. I don't really want to raise the debate on whether thay cause ALS or symptoms. My neuro stopped me for a few weeks to...

Wow - what a journey. Been seeing my regular neurologist regularly. Brief history - "clean" EMG done by him early Oct, visit to neuromuscular specialist at Emory in Nov with normal clinical exam (whole 'nother story), follow-up visit with him in February and have requested another EMG since it...

I have written before about the jerking of my arms/shoulders. It is almost out of control. Some days it is non-stop throughout the day, originating in my chest muscle (pecs), shoulder, bicep, tricep. It does not move the whole arm wildly, but it certainly moves the arm. People have noticed it...

Let me try to describe a realistic, but hypothetical situation and get some reaction (sorry, my brain just works this way - too analytical)... I know docs measure strength on a scale when they do a clinical exam, but it seems impossible for them to really measure strength the way they do until...