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  • Users: ktmj
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  1. ktmj

    Do i have ALS or BFS? Please help

    From experience, let me advise you that seeking "twitch" help here will only feed your anxiety. Every question you ask, every "answer" you get, will never reduce your anxiety. I can't tell you what it is but it sounds like BFS - my body-wide fascics started one night in 1989. And I am one of...
  2. ktmj

    I am from north GA - what part of GA is the test lake?

    I am from north GA - what part of GA is the test lake?
  3. ktmj

    No problem. You appear to be a rational "twitcher". I could go into a lot of detail, but I will...

    No problem. You appear to be a rational "twitcher". I could go into a lot of detail, but I will spare you. My BFS or BCFS has been ongoing for 23 years. I would say it has worsened with time, but a much bigger concern is depression and health anxiety that accompanies it sometimes. Mainly due to...
  4. ktmj

    Finally an appointment with ALS specialist

    Are there more symptoms than what you have listed here?
  5. ktmj

    In Limbo with 3 DRs and symptoms getting worse.

    I would not do that. I know you don't want to hear this but health anxiety can cause everything you have described. You ask how I know? Been there done that. Your symptoms are closer to the ones I dealt with than ALS.
  6. ktmj

    bulbar als

    OK it's time to throw the flag on the field fromeurope. No more questions and no more posts unless you have seen a qualified neurologist. You are welcome here but every question you are asking has been answered countless times and can be answered with a simple search. You are not...
  7. ktmj

    Nervous About ALS !

    I give this advice too often, but... Go chase some REALLY wild women, and forget about ALS!
  8. ktmj

    very frustrated

    Gosh, sorry you had such a bad experience at Mayo-JAX - mine there (for a different reason) was much better. Does not sound like ALS but you need a really good neuromuscular specialist to figure this out. Hopefully all the FL folks can point you in the right direction. Best wishes!
  9. ktmj

    3 Year Fun - What do you think?

    Maybe I scanned too quickly (sorry but short attention span) but did not see a reference to the type of doctor you are seeing. If only a neurologist they are very general and you need to be seeing a neuromuscular specialist, preferably at a teaching hospital. BTW your symptoms don't sound at...
  10. ktmj

    2nd Follow Up With Neurologist, ALS Specialist

    Steve I would be interested in your feedback after the neuro visit, since my persistent symptoms (not ALS) are similar to yours. And, you appear to be a reasonable rational guy. Mine have persisted for years and I have accepted the diagnosis of BCFS. There are several options to help control the...
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