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  1. A

    Granulation round peg stoma

    My mom too had a peg tube. She kept it very clean at all times however she too would develop granulations to one side of the peg. It would start like a blister, get very red and then it would burst, heal and then start all over again. We had gone to a dematologist and he had told us to use...
  2. A

    Acid reflux and ALS?

    My mother was diagnosed with bulbar als June 2006. Prior to her being diagnosed the doctor's were telling her that her problems were from acid reflux. Maybe there is some connection. Anne
  3. A

    Brampton walk for ALS

    Sam...I think you mean a feeding tube ...not bipap Anne
  4. A

    Our beloved mom/nana has passed

    Holly...I am so sorry for the loss of your dear mother. She is now FREE from this terrible disease. May she rest in peace. God Bless,
  5. A

    Advice to help with sleepless nights

    Thanks everyone....I actually got a box and cut out the bottom and got her to use that lastnight and it worked well.....thanks again. Anne
  6. A

    Advice to help with sleepless nights

    Hi Cindy...thanks for the website....they certainly have lots of products. I have looked and looked, would you happen to know what it is called or in what section I would be able to find it. Thanks, Anne
  7. A

    Advice to help with sleepless nights

    Thanks for the suggestions. She does have an adjustable bed but the covers still seem to be a problem. Anne
  8. A

    To my Beautiful Mom---I will MISS YOU

    Hi Kepi...I am very sorry to hear about the loss of your beautiful mom. I too lost my mom from bulbar als Sept 07. You described your mom just the way I would described my mom. My mom also passed away hours after her priest had come in. Actually when he arrived my mom was in a state of an...
  9. A

    Advice to help with sleepless nights

    Hi everyone...I have not been posting for some time now.Some of you might remember me, my mom passed away September 07 with bulbar after a 15 month battle. I am back on the forum and looking for advise on how to help my sister in law who has been battling ALS for the past 8 years. Her symptoms...
  10. A

    One more issue with bi-pap

    Holly....my mom suffered with the phlegm problem. The ALS clinic had suggested she use Accent meat tenderizer under the tongue or on the tongue and it would cut the phelgm. It worked to a certain degree for my mom. She would put some on a little plate and then drop a few drops of water to make a...
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