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  1. J

    Demyelination w/ PLS?

    Kim, My fascics are everywhere...UGH...more prominant lately in my right arm and leg and it is the left side that I have the most trouble with? I have fascics in my chin and one drink of wine makes me salivate way too much...very embarassing to talk, always afraid I'm going to spit on someone...
  2. J

    Demyelination w/ PLS?

    Doctor's office called and they found demyelination and some other junk but I asked about lesions and they said there were none, just demyelination so I asked about the PLS diagnosis and she said that there can be demyelination in PLS? Say what? Anyone heard of this? ARGH...I am frustrated...
  3. J

    Why Bother?

    I LOVE FUDGE POP TARTS straight out of the toaster and a HUGE GIGANTICOUS MEGA GLASS OF MILK!
  4. J

    Why Bother?

    Ugh...I am so sorry, Roadkill (had to snicker at that one). I must have emotional LABILITY! You are in the right place (the board here) and with the right folks. There is something about your post that leads me to believe you have quite a bit of life left in you and maybe even a sense of...
  5. J

    Back to stay

    Thanks to you all. Yes, Kim, I have those crazy fasics, still. And, Al, thank you! I really hope I am a slow mover also ...hope and pray, hope and pray... Hoping and Praying, J
  6. J

    PLS, Memory and Bachlofen

    Yes, and mine was confirmed by a neuropsychologist about six months ago. Finally got a diagnosis of PLS today....
  7. J

    Normal days?

    Having finally gotten the completely unexpected diagnosis (at this point) of PLS today, I can tell you every single day is different for me. But yes, attitude has so much to do with it! I had two weeks that were horrible not long ago but then finally, out of the blue, I feel a bit better...well...
  8. J

    Back to stay

    Almost one year to the day from when the symptoms first began: For all you who remember me: Good news: not MS or MSA.... Bad news: PLS I'm here to stay, not sure how much I'll actually be here because I don't feel so great. My heart stuff is back, too, as I shared I think in another post but...
  9. J

    Rose, how are you?? I have been away so long. I got your PM. I just went through a divorce and a...

    Rose, how are you?? I have been away so long. I got your PM. I just went through a divorce and a move, career change, etc. I am doing okay. I have had two hospitalizations throughout all of this. They have diagnosed me with postural tachycardia so my heart beats way too fast and I am on a beta...
  10. J

    The "i appreciate bethu thread!"

    I think you are awesome, too, Beth! hugs!
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