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  1. C

    so scared husband has ALS

    What a tough situation, I'm so sorry Libby. I will keep you and your family in my thoughts. When you're able to, look up the ALS chapter nearest you (Duke has an ALS program as well. You may find resources there too) They can be a very good source of all kinds of information. and it's a...
  2. C

    Is there much hope without bipap?

    Hospice will be and is wonderful. They will be a great help and comfort. My mom did the SAME thing - no bi-pap at night and eventually, no bi-pap period, just oxygen thru nasal pillow. If she begins to show ANY signs of distress, the hospice nurse will step in to help her, whether it's...
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    Sometimes I feel all fingers and thumps...

    Winnie - I cared for my mother who was unable to use her arms or her legs. It's tough, but if your patient can speak, ask about position, your grip (is it too hard or too much pressure?) and just go slow. There are also devices and 'tricks' that you may develop and find useful along the way...
  4. C

    Rough couple of weeks

    Sharon, I can tell you that as hard as it is to watch over time, you may find some small comfort knowing that you are helping your husband maintain some control over his life. Does that make sense? My mother was 'on the fence' as far as a peg was concerned, but she went forward with it at my...
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