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  1. sukilou

    thyroid?

    Well, here goes, my latest development, although part of it not so recent: 1991, I had a total thyroidectomy due to a very large multinodular goiter, which was constricting my windpipe. I have been on throid replacement therapy since then. 2001, I noticed a swelling on the right side of my...
    • sukilou
    • Thread
    • als als symptoms back biopsy breathing fvc info mri problems progression surgery swelling symptoms therapy ultrasound wanted wrist
    • Replies: 22
    • Forum: General discussion about ALS/MND
  2. sukilou

    It's Official--Definite ALS

    Last Mon, Nov 10, I saw Dr. Kimberly Goslin, director of Providence ALS Center in Portland, Or. She did a clinical neuro exam and another EMG, and confirmed my ALS diagnosed by my general neuro. She then ordered more bloodwork (12 vials it took), a 24 hr urine test for heavy metals, and a...
  3. sukilou

    Bulbar symptoms?

    Good morning to all! (It's still barely morning here in Oregon--I slept late today!) About 2 weeks ago I posted with my story and asking about rate of progression. At that time I had not noticed any bulbar symptoms. But that has changed recently. Last week my lower lip started twitching...
    • sukilou
    • Thread
    • bulbar bulbar symptoms denial depression progression questions story symptoms symptoms? tongue twitching umn walker
    • Replies: 3
    • Forum: General discussion about ALS/MND
  4. sukilou

    rate of progression?

    I'm new to the forum, and have been recently diagnosed with MND, probable ALS by my neuro. I'm being referred to the Providence ALS Center, Portland, Or, but my appt isn't until Nov 10. I'm 64, will be 65 in Dec, and am wondering about any correlation between age and rate of progression. I...
    • sukilou
    • Thread
    • advice age als atrophy awareness balance brain bulbar clinical emg foot mnd muscle muscles physical therapy problems progression second opinion surgery symptoms testing tests therapy tongue trip wanted weakness wrist
    • Replies: 32
    • Forum: General discussion about ALS/MND
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