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  1. sukilou

    Foot Turning

    tfisher, yes--my right foot turns to the side and when I try to walk without my brace, I am walking on the outside of my right ankle. I can only take about 3 or 4 steps with my walker before I need to rest my foot. I am spending most of my time in a power chair now and use my walker only to...
  2. sukilou

    Keeping track of who is from where

    Troutdale, Oregon--gateway to Columbia River Gorge!
  3. sukilou

    Night Owls?

    Well, since I last posted about being a nite owl, I'm having to change my ways. Recently I fell getting out of my chair at about 1 am, can no longer get myself up, and spent the nite on the living room floor. My husband is a very sound sleeper and is hard of hearing so he didn't hear me...
  4. sukilou

    UMN Dominant ALS

    I'll jump into this discussion--I was diagnoseded with UMN dominant ALS. Yes, my 2 EMG showed LMN involvement, hence the ALS diagnosed. Because I presented with UMN symptoms first and they are more prevalent than loss of muscle strength is why the UMN dominant diagnosed. In fact the first...
  5. sukilou

    Hi Mike, I sent you a PM, but I don't know if I did it right. If you don't get it, let me know...

    Hi Mike, I sent you a PM, but I don't know if I did it right. If you don't get it, let me know and I'll try it again. Hope you are doing okay!
  6. sukilou

    Rose--I love your new dog. If I can figure out how to post pix, I'll put one up of my puppy...

    Rose--I love your new dog. If I can figure out how to post pix, I'll put one up of my puppy love. She's a Japanese Chin and so homely she's beautiful. Hope your computer woes are over soon. Please post about your new house--I'd love to hear all about it!
  7. sukilou

    Night Owls?

    Yep, me too, I'm a chronic nite owl, but have always been, except when raising my family. And I'm married to a really early bird. Opposites attract! I figure that when I need help getting into bed I'll have to change my ways, so I'm enjoying my late nites while I can.:lol:
  8. sukilou

    incontinance

    Hi Caroline, Your urinary difficulties are exactly like mine, although I'm considerably older (65). My ALS neuro explained to me that the bladder is smooth muscle and can have spasms much like our other muscles which can contribute to the urge incontinence problem. She prescribed ditropan xl...
  9. sukilou

    thyroid?

    neuro visit today I saw Dr. Goslin, my als neuro, today. She is very pleased with how I look to her with very little progression in the last 3 mos. I asked about my low blood calcium level and upper motor neuron symptoms. She said that my calcium level was at a normal level when she did my...
  10. sukilou

    thyroid?

    I have had 2 EMGS which showed chronic denervation and reinnervation in three areas so I don't doubt my diagnosed of ALS, but find the whole subject of low calcium curious. My legs are the weakest part of me, and I can only walk with the use of a walker.
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