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I just wanted to let everyone know that my Dad passed away last Thursday (Feb. 15th). It's been a very difficult time. He got pneumonia and it was like he just couldn't fight any longer. His passing was peaceful, but heartbreaking. I'm thankful that I have been fortunate enough...

Just got back from spending 4 weeks with Dad. He's really having difficulty talking now so I am thinking it's time to start alternative ways of communicating. His doctor has prescribed oxygen for dad. He has had a couple of chest infections and was diagnosed with COPD a couple of years ago...

Spent 3 weeks with Dad. It gets harder and harder to leave. We were both in tears when I left. I am still trying to get all the equipment we need to look after him at home. He is so afraid of being left alone for some reason and it hurts me that he needs this reassurance. He doesn't seem to...

I just got back from spending the last 16 days with my Dad. For the most part he was in fairly good humor. The last couple of days got rough. He complained about being in pain at night. I went to the Dr. who prescribed Oxycontin. It seemed to really bring Dad down. At least I am assuming...

I need to know if there is anyone who has NOT gone to an ALS clinic for an assessment and is being treated by their family doctor. I'm having some difficulty with my Dad. He does not want to go to the city again. The clinic says that he will not be able to get the perscriptions he needs if he...

Hi, Took my Dad to see a specialist last Tuesday. This doctor did a physical examination of my dad and then did and EMG and NVC tests. He had my dad in his office for about an hour. Lots of questions for my dad that he answered as best he could. At he end of the hour he told my dad that he...

Took dad to the ALS specialist on Tuesday. This doctor did an EMG and I think nerve tests as well as a thorough exam. of my dad. He confirmed the ALS diagnosed. Gave him a form to fill out for Rilutek and ordered blood work. He said dad could go for the MRI but didn't think it would alter...

Hi all, I'm leaving today for my Dad's farm. (When I was there earlier this month Dad & I watched a doe and her fawn walk through the pasture about 100 yards from the deck so I know the peacefulness of morning coffee in the country). We are taking him to Winnipeg on Tuesday to see a...

Hi, Managed to get an appointment for my Dad on August 1st in Winnipeg with a specialist. I'm really nervous because I told Dad I thought it was important for him to go and see this Dr. I'm scared too. The outcome is going to mean that he (Dad) and we (his family) are going to have to make...

Just wanted to mention a few things...ask a few more questions. After seeing a second neurologist who examined my dad and "confirmed" the diagnosis of ALS I have been very busy. Through emails and telephone conversations with the Manitoba ALS Society I have been in touch with a doctor's office...