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  • Users: CB1977
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  1. C

    Thank-you

    I just want to thank everyone for your support, information, and patience over the last 2 years. I first came here is Sept 2008, led here by google like many. I have had a ton of testing in the last year including a muscle biopsy that came back abnormal (but didn't show signs MND, possibly a...
    • CB1977
    • Thread
    • advocate als back biopsy cure health information mnd muscle muscle biopsy questions support testing wanted
    • Replies: 3
    • Forum: Could this be ALS?
  2. C

    Update on my condition and latest exam...

    Hello Everyone and Happy New Year. I wanted to post an update for anyone that might be following my situation bc it is similar to their own. Its been since late May of 2009 since I have had an EMG. I just completed an EMG at ClevClinic last week. I still have many of my symptoms. A few have...
    • CB1977
    • Thread
    • back clinical diet emg fatigue foot free frustrated hip hours mnd muscle muscle twitching muscles second opinion shaking shoulder stiffness support symptoms tongue twitches twitching update wanted work worried wrong
    • Replies: 6
    • Forum: Could this be ALS?
  3. C

    Hello Everyone

    Hello- I just wanted to say Hello to all of my friends on this forum and wish you the best. I dont have any new news, some aspects of my illness have improved, some have slightly progressed but no major developments. Take care everyone, have a happy holiday season! CB
  4. C

    New symptoms confirmed by Doc?

    Hello- I have been posting here for about 18 months now. I have not posted for a while. I decided to come back to give an update and to also get some input on my most recent test results. I don’t want to make this post tedious to read so I wont go back and do a re-cap of all of my symptoms...
    • CB1977
    • Thread
    • back breathing eyes falling finger hope ideas muscles night ring finger running sleep symptoms test update wanted work wrong
    • Replies: 20
    • Forum: Could this be ALS?
  5. C

    Hand Atrophy?

    Hello Everyone- This has been getting slowly worse over the last 4 months. IT started out where this area of my hand (area opposite my thumb) was very unsmooth looking under the skin and now it has turned into what looks like strips that are torn out. I don’t have profound weakness but I do...
  6. C

    Dimebon (dimebolin hydrochloride)

    I wanted to post this for everyone to see. When I did some research on this drug, it says that it might also have a positive impact on neuromuscular diseases such as ALS. It is already in existence, was used in Russia since the 80's as an antihistamine. RECENT ARTICEL IN NEWSWEEK-...
  7. C

    Section for Undiagnosed

    I am not the first to suggest this so I don’t want to act like this is my idea :wink: but I do think it is a great one. This forum could really use a section for people in limbo land. I feel uncomfortable continuing to post in the "Do I have ALS" section because I agree with my neuro's...and...
    • CB1977
    • Thread
    • als diagnose diagnosed do i have als money ohio questions symptoms tests undiagnosed wrong
    • Replies: 18
    • Forum: Could this be ALS?
  8. C

    Shivers and Shakes

    Hello- I have been around this forum for a while now (over a year). I recently had an EMG at OSU by a neuromuscular specialist and it was clean except for a few faciculations detected in my legs. My latest symptoms are very alarming to me and I need input & feedback 1. When I lay my...
    • CB1977
    • Thread
    • clean emg cold emg fear ohio symptoms tremor weakness wrist wrist drop
    • Replies: 12
    • Forum: Could this be ALS?
  9. C

    Recent EMG was good

    :D I had my EMG this week. It has been a year since my first EMG and 6 months since my last EMG.It has been 15-17 months since my first noticable symptom (lower back stiffness and soreness) and a year since my muscle twitches began (8 months since they became global). It has also been 5 months...
    • CB1977
    • Thread
    • arm atrophy autoimmune back emg mnd muscle muscle twitches muscles stiffness support symptom symptoms tongue twitches
    • Replies: 49
    • Forum: Could this be ALS?
  10. C

    Iplex

    Does anyone know if this is showing any promise? Here is an article off of the ALS website. If the FDA approved it, it has to have some benefit, correct? http://web.alsa.org/site/PageServer?pagename=AdvocacyArchive_031009
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