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  1. thelma313

    My Dad Angelo Tursi

    I just wanted to let all of you know that my father, Angelo Tursi, was set free this morning at 11:38am. My mom, my sister and I were by his side when he left and we all got the chance to tell him how much we love him and to say our good-byes. My dad was a real trooper throughout his relentless...
  2. thelma313

    Feeling heartbroken

    I have not started a new thread in a long time. Part of me, just didn't want to get you all down and the other part of me didn't want my mom to feel sad in case she reads this. Today she told me that her heart feels broken and her chest feels tight and I feel the exact same way so I think it...
  3. thelma313

    Tony Proudfoot on the cover of our local newspaper

    For those of you who are not Canadian football fans, Tony Proudfoot was an all-star player for the Montreal Allouettes in the late 70's. He later became a successful sports announcer as well as being a Physical Education teacher at Dawson College in Montreal for many years. He was present during...
  4. thelma313

    Pain and ALS

    My dad is in horrible pain and I feel a little pissed off about this! I mean my poor dad has not been spared a single aspect of all that ALS wreaks on a person, but in addition to being immobile, unable to speak, unable to eat or breathe without his Bipap, he is also in terrible pain! He has...
  5. thelma313

    The Forum Follies Get LOST

    FADE FROM BLACK Close up of a closed human eye. It opens suddenly and then blinks a few times. CUT TO Glen Brittle awakens in the jungle, disoriented, battered and bruised, lying on the ground of a tropical forest. He notices for a fleeting moment, a small black Schnoodle in an ill-fitted...
  6. thelma313

    Throat Pain and ALS?

    I am just wondering if anyone with Bulbar onset has ever experienced throat pain and the sensation that your throat is closing in? My dad is in the emergency ward yet again with this symptom. The night before last he felt an acute pain in his throat and a swelling sensation that was preventing...
  7. thelma313

    ALS Walk in Montreal today!

    Hi Everyone, It is with great pride that I and about a dozen family members and friends walk with my dad, Angelo, in the 2009 Walk for ALS in Montreal, Canada. My mom and I have raised over $4000 together! We even got team t-shirts (which my dad doesn't even know about yet. It's a surprise.)...
  8. thelma313

    Suction machine information needed

    I am looking into getting my dad a suction machine as soon as possible to help him with his secretion problem. I want him to have it when he comes home from the hospital which should be within the next few days if all goes well. Does anyone have any recommendations? Advice?
  9. thelma313

    Update on Dad and Scalamobil

    My mom posted this in the new members thread but I thought it would be more appropriate to start a new one. Here is what she wrote: P.S. I have seen my mom use the Scalamobil and it is really cool! It's amazing technology and makes it relatively easy for PALS to have access to places that you...
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