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Hi Beebe. I am so thankful that it isn't ALS. My husband is still struggling. He has a lot of pain and stiffness. The muscle cramps are really bad. He gets them all over. The more physical he is the worse it is. The muscle wasting he has is from focal myopathy. (ulnar nerve and carpal tunnel in...

Hi Beebe, I haven't been on the website much. I'm so sorry to hear about Jack's passing and Stephanie's health. My prayers and thoughts are with you and your family. My husband was diagnosed with benign fasiculation cramp disorder. He was laid off and lost health insurance. The doctor...

Hi Lou. I am so happy for you! It is great that he could tell right away what you had. I'm glad you had a good experience there. Take care, Sunshine

It could be benign fasciculation syndrome. I think the website is www.aboutbfs.com. Try using the search option so you can see other post about it. Take care, Sunshine

Hi MTV. We also like Dr. Mintzer. He referred us to Dr. McCluskey because he is a specialist with MND. I guess that is why you chose him. The wait is going to drive you crazy. Maybe they could call you if someone cancels an appointment? If you feel you can't wait, maybe try another ALS...

Hi Tom. Try to think positive. I know it is hard. The odds are in your favor that you don't have ALS. Try to find a doctor who will listen to you. Even if you don't have ALS, you still want that doctor to find out exactly what you do have. I wouldn't hold off on your plans. Discuss with...

Hi Capt. Al. Great webpage. Now I actually have a reason to go on myspace! My kids will wonder what I am up to! Take care, Sunshine

Hi Bill. I am so sorry about your Mother. We will keep you in our prayers also. Thank you. Sunshine

Hi Beth. I agree with you. You stated it perfectly. I wish I could put my thoughts down as clearly as you did. Maybe that is part of the problem. We are communicating by the written word and not face to face. It is hard sometimes for people to express themselves this way. Maybe we all can...

Hi Beebe. I'm sorry to hear that. It sounds very painful. Please let her know I'm thinking of them and keeping them in my prayers. I hope you both have a great Mother's Day this Sunday. Take care. Jennifer