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Hi everyone! First off, I wanted to say thank you to all those who have continually offered support for me throughout these last 7 months. It has been a long 7 months, and I can sympathize with so many of you. I started having body wide twitching last August. It literally came up over night...

I know that many people describe fascics with ALS as looking like worms under the skin. Can you see these fascics all the time or do they stop when you change positions? Lastly, are the fascics really faint or is it easy for anyone to notice them?

I have a quick question. The anxiety I have been feeling is once again through the roof. I was wondering if atrophy always presents with at least a moderate amount of weakness in ALS. Last night I was stretched out and just happened to notice that my left foot has a much more prominent tendon...

I posted a week or so ago about me having trouble opening jars. Since then, I have been able to open many jars. I haven't noticed anymore weakness. However, when I tense up my thumb and move it on my right hand, it completely makes a huge dent underneath the pinkie and you can see the tendon...

First off, I have really tried to get ALS off my mind lately. In November I saw the ALS specialist at Cedars Sinai and she did a clinical exam and found everything to be normal except some asymmetry in my tongue. She scheduled me to have an EMG two months later for my piece of mind. I had...

I just bit my tongue in my sleep again. This time it was the tip of my tongue. I had only been asleep maybe 10 minutes. Now my tongue is bleeding. Should I be concerned about this? Is this a symptom? It doesn't happen when I'm awake.

Is this a symptom of early bulbar onset? I'm really trying to move past this and not over analyze everything, but lately I've noticed that whenever I eat crackers, parts of them get stuck in the back of my mouth between my molars and my cheek and I can't get them out with my tongue. I don't...

I'm sorry if I'm starting to annoy people. I'm really not trying to. When I was looking in the mirror today and making scary faces with my daughter, I noticed that the left side of my lip drooped down more than the right. It is not obvious unless I'm making a silly face. My lips seem pretty...

For the last month, every time I eat a big meal, I have some phlegm in my throat after. I can either clear it with a quick cough or by clearing my throat a couple times. Does this sound related to ALS at all? I have read that coughing up phlegm after eating can be an early symptom of a...

When a neurologist checks your tongue for fasciculations, do they do it while your tongue is protruded or while it is at rest? Mine does not twitch at all while it is inside of my mouth, or when I relax it outside of my mouth, but if I start to somewhat tense it up, the outsides quiver all...