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Janine passed away Saturday night after a long battle with MND at the tender age of 39. She has left her stamp on my heart and I will remember her forever. Before she died I was able to pray with her , such a precious time and I am able to let her go as I know she's with Jesus.... John 3 v 16...

My patient doesn't want to go to a care facility, but her family aren't coping and want her to go into one. has anyone had any experiences with care facilities? Winnie

My patient doesn't want to go to a care facility, but her family aren't coping and want her to go into one. has anyone had any experiences with care facilities?

My patient is almost 3 yrs into her disease. Things at home are quite bad as there has been a family split, and the husband has had to cope with a lot of things. He has come to breaking point and doesn't know how long he can continue to be there for his wife, he wants her to go into care and she...

I haven't been care giving all that long, I'm employed to do two hrs work along side another caregiver. Those two hours consist of toileting, bed bath, dressing and transporting to day bed in lounge, feeding through peg tube, and some days shampooing her hair. Sometimes it all goes so smoothly...

Do a lot of MND patients have trachea's? I've just started working with a lady who has had MND for two and a half years, 18 mths ago she got a severe chest infection and went on a bipap machine , she also has a trachea and a peg. Thanks Winnie

I'm starting as a caregiver to a woman who has MND ... not sure what to expect at this stage but will stay in contact with you throughout the journey. She's a mum and has had MND for about one year I think, she has a peg, ventilator and a suction machine. I have been care giving at a rest...