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Hey Hangin' I've been playin this game for a while and I feel for ya brotha... I noticed that I am losing my ability to control my emotions and how it affects those around me. So I say hang in there brotha and pray to God for the strength you need ! Fight On, Shane the Pain

Hey Trfogey, I guess you're having a bad day huh ? Remember when you didn't know how much fun that was ? Lighten up pal... Fight On, Shane the Pain

Dear ALS family and friends, A guy I know lives up in Long Beach CA area is taking this Pramipexole 22.5ml twice a day and he can't talk so good and his wife is his primary caregiver and doesn't have alot of time for fool questions from me... So I was wondering if any of you brainiacs knows...

Sorry to hear about your mom dear... it is tragic and very painful. I've been playing this game for a while now and losing function was the most emotionally upsetting. You need to lean on others and get their help. Just because idiots start talking about Jesus... doesn't mean it ain't a bad idea...

Hi Lisa, I wasn't thrilled when I had to go on a breathing machine either. First we just did it at night but not too long after the body said we need it all the time. I've been on one for two and a half years now so this doesn't have to be the end for your mom unless she chooses not to use...

Hey Sequoia, You still didn't re-post the draft letter...I'm dien' over here ! You Go Girl ! Fight On, Shane

Dear ALS patients friends and families, I really am not too worried about the drug companies getting sued by a dieing ALS patient ! What I am worried about is idiots worrying about this kind of crap rather than supporting the idea to Treat Us Now ! Personally I feel my time is very limited...

Dear Fellow ALS Patients, Friends and Family, I think we really have a chance here to make change within FDA and the pharmaceutical companies. The premise is this: we know ALS is a killer so why not put drugs in the hands of patients Now... If you agree with this premise, please click the...

Dear NMarron, Do you have a support system, if not start to build that as you already need it. Reach out to MDA/ALS chapter(s) in your area to see what help they can be to you. They usually have loaner closets full of stuff and are happy to let you use it. When you feel the time is right...

Hi CJ, I went and stayed at Hospice for a week to give my wife and kids a break. It was a good idea and I would do it again, however they really don't know much about ALS so I had my own caregivers coming every day. My caregivers kept me alive otherwise it would have been alot worse. Take...