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Back in 2007 I noticed that I could not move left big toe, at the time I didn’t know but this was the first sign. In the next year I begin to loose muscle in my left leg calf, this concerned me and my family physician. After a lot of MRI’s, catscans and emg’s, it was clear that I had a lower...

Prattstar, I was diagnosed with ALS in 2008, since then I have been again officially diagnosed with Adult Spinal Muscular Atrophy. It is a motor neuron disease and it is benign is what my neurologists has told me. It is a pure lower motor neuron disease and it has been a very slow progression, I...

My story is confusing and long so I won't tell it again. I had an MRA two weeks ago due to horrible pain in my right leg, turns out I have two herniations touching the nerves. I talked to a neurosurgeon, who would like to do a minimally invasive procedure to remove the herniation. I told him I...

I should have said even with a dirty emg (lower motor neuron involvement) it isn't nessicarily ALS.

Even with a dirty emg (lower motor neuron involvement) it does not mean ALS.

I noticed you have an abnormal SNAP, I do not believe this is consistant with a lower motor neuron disease. You might want to read the sticky EMG and ALS thread. Someone correct me if I am wrong.

Buenosaires, Do you have any upper motor neuron symptoms?

Hello Buenoaires, Your story sounds similar to mine, once a very active and athletic man but blindsided by a MND. I was originally diagnosed with ALS, then later with Monomelic Amyotrophy by the Dr's at the MDA clinic, due to slow progression. I think Adult Onset Spinal Muscular Atrophy probally...

Bachster, I guess my latest diagnosed is Monomelic amyotrophy, this was given to me by the second dr. I saw at the MDA clinic. My emg does not support this and I don't think the Dr. even looked at the report. I feel I fit into the Adult Spinal Muscular Atrophy category much better. I have really...

Bachster, If it is a pure lower motor neuron type and very slow it could also be an adult onset spinal muscular atrophy. I have had an ALS diagnosis then turned to MMA then possible CMT with a lower back problem but adult onset spinal muscular atrophy fits me the best. There is a website...