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  1. S

    NEW GUY with Questions - patient losing voice

    Hi Mike, I can only share with you my experience. My Mum died of ALS 2 years ago. She had limb onset that progressed to her voice, throat etc. She died within 2 years of being diagnosed. She was being given morphine in her last two weeks. She died calmly and peacefully in her sleep. She didn't...
  2. S

    overwhelmed

    Hi Jennifer, my thoughts and prayers go out to you and your family. My Mum was diagnosed with limb onset ALS when I was 39. She lost the use of her legs first and then her right and left arm , she kept her voice until her last week although it was sometimes difficult to understand what she was...
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    I think we are losing her.

    I am so sorry for your loss. I lost my Mum a year ago from limb onset ALS. When she died my brother called to tell me she was free again and at last at peace. I miss her terribly but take her with me, in my heart, where ever I go and talk about her frequently with my kids. I was honored to help...
  4. S

    Any luck with Mannetech products?

    My Mum spent hundreds of dollars on Mannatech and used it daily. She passed away in January. We didn't really see any results from the product. She died 2 years from diagnosis, who knows though, maybe her quality of life was maintained longer because of it. I wish you much success with it. jane...
  5. S

    Hello All

    Hi Kay I helped care for my mother who passed in January. We had a motto that we would take one day at a time, it helped for her and us not to feel to overwhelmed about what might happen tomorrow. She died 2 years after diagnosis with limb onset. She never wanted a feeding tube so I can't help...
  6. S

    my mother is now my gaurdian angel

    Lynn Hi Lynn, I just wanted to send you my thoughts and prayers and let you know I understand what you are going through. I lost my Mum on Jan. 6 of this year to limb onset ALS, and I too was a caregiver. She died at home surrounded by family. Looking after my Mum consumed my familys life, but...
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