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thank you for yor kindness.

hello...becca here...this is to let you all know that my mil susan died on sunday. the funeral was yesterday. she has als along with dementia. she developed a bowel obstruction that landed her in the hospital...and because she was end stage als, they did not recommend surgery for the bowel...

i will say this one thing... we have a similar situation...and at this point...when they are on a trache, and not able to eat or drink...it cant be long. once you see signs of end of life...(general) you know it will be short...hours... hang in there...we're trying to too... sincerely, becca

hello there everyone, becca here...i hope you are all coping with your situations as well as can be expected... i have a question and would appreciate some answers if you have some... my mil has als, and for awhile now has had a terrible cough reflex....now, her voice get so quiet as soon as she...

so sorry to hear hello there...i am so sorry to hear about the diagnosed of your wife. als is a terrible disease... i especially took note of your comment about being a terrible caregiver because of your feelings.....i am sure you are not terrible at all.... arent you just taking care of...

as far as i know hello there...i am so sorry to hear about your loved one...although its true that noone can say for sure because each person is different...i thought that in order to receive hospice, the end had to be within 6 months time...so sorry to hear about all of this...it is a...

what i have heard hello there...becca here...i have wondered the same thing and did get an answer to the question...once they need bipap close to 24 hours a day, thats when they switch to a vent...if they don't want that...well then, that would be it. as to how long it takes to get there...

answer to question hello mary, becca here...we wondered that same thing...when do they switch to the vent? finally we got the answer....it is when they need bipap 24 hours a day...then they go to a vent. at least thats what we were told, maybe someone else on this forum has additional...

hello. hello there...becca here...i just read your post and only have a minute to reply...as for the bipap...i have found that most people w/als who have a fvc 60 or lower go on bipap...my mil's is 50. some docs start it even sooner as they feel the patient will be more comfortable longer...

good morning.. becca here...i was glad to see your post...i am so sorry about your mom..... it does cause a flood of questions and a lot of unknowns... i will answer anything i can...as to the rilutek, yes we tried that, but it gave her serious uncontrollable diarea and that would not do...it...