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  1. C

    Mom Died of ALS/Should I Get Tested?

    I have some very difficult moments thinking I have ALS at times. It does not consume my life, but it affects my life. My mom passed away from ALS. I'm thinking of trying out how to become tested to see if I have a genetic defect for the disease (SOD1?) Has anyone done this, and what do...
  2. C

    It's Been a Year...

    ...since my mother died from ALS. She had been coughing for quite some time whenever we would eat together. She always blamed it on "too much pepper." Then some dementia set in. Then some breathlessness. Then some choking. Then some right-arm difficulties. Then slurring of...
    • chrismaya
    • Thread
    • als angry arm children choke choking coughing dementia life worried
    • Replies: 4
    • Forum: In memory of
  3. C

    And While I'm Here....

    another question. My mom was diagnosed at the age of 77. Does anyone know how common this is? Just trying to figure it all out.
  4. C

    How Common is Dementia

    My mom definitely had dementia right around the time some of her ALS symptoms started. How common is this; does anyone know? I thank God for her dementia. She had no clue what was happening to her.
  5. C

    My Mother Passed Away

    My brave mother, Akilia, passed away from complications of ALS on August 31. She had a bit of dementia (due to ALS?), but never complained. She would fall; she would choke. I used to practically carry her into doctors' offices. She always had an upbeat attitude. She had her funeral...
    • chrismaya
    • Thread
    • als als research als? choke dementia donations life research
    • Replies: 14
    • Forum: In memory of
  6. C

    My Mother has ALS & is in a Hospice...

    My mom is now in a Hospice after bravely and courageously and un-complaining-ly battling ALS for a few years now. She is in there due to falls, lack of nutrition and poor swallowing. She can hardly swallow at all. She is not too interested in eating. All her liquids are thickened, and...
  7. C

    Constant Urination?

    My 91 year old father is home w/my mother who has ALS. She is doing quite poorly. Anyway, she wants to go to the bathroom EVERY TEN MINUTES! I called her primary doc and asked if he could prescribe an antibiotic w/out seeing her, as it would be tough to get her in there. So he did...
  8. C

    Does the Medical Community Not Know About ALS?

    I am trying to get my mother into either a Hospice or nursing home. You don't know how many times I have heard, "Well, if your mother were to get better and be able to walk on her own............" "If your mother takes a turn for the better................." I am not trying to dash the...
  9. C

    The Bravery of My Mother

    I am 44 years old and have always had a horrible relationship with my mother. My mother was quite dysfunctional her whole life. She would have fits of rage, slam doors, etc. I moved out of the house as quickly as I could once I could support myself (21). All my life I just hated her...
    • chrismaya
    • Thread
    • ability als back coping dementia depressed friend healing life love stages support wheelchair worried
    • Replies: 13
    • Forum: Current caregivers
  10. C

    Mom Has ALS/How Can I Get Tested 4 Genetic Link?

    I'd like to do this, and wonder if anyone here has been tested in some way due to a close family member having ALS. I understand from what I've read that the test can give you a false "positive" hope, but I think I'd like to go for something. Thanks.
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