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  1. sdsyd

    Long time no post- sorry

    Hi everybody! Sorry for the gigantic lag in updates. I must admit I have been trying to stay away from this forum so that the ghost of Xmas past doesn't haunt me anymore, if you know what I mean. I do come and check in every once in awhile to see how folks are doing. I do miss the friendship...
  2. sdsyd

    Do I have ALS/MND?

    Hi Markpnw- Have you had any test to rule out MS? Those sound like MS or (maybe?) CIDP symptoms to me, but I am definately no Dr. Lots of automiinue disorders and neuro disorders are very hard to figure out. My advice is to Hang in there and keep pursuing a diagnosis, getting mroe referrals is...
  3. sdsyd

    Voice Banking Guidelines

    I know this is an old post, but just had a lady call me ( afriend of a friend) who sells Reliv. Any more info out there about it since this post was last made? She told me it was not a cure for anything but helps the body mend itself and is helpful for a vriety of conditions. It is very...
  4. sdsyd

    Section for Undiagnosed

    oh Al- gotta love you, man. I am one who has been like a leprachaun on this forum. Or better yet- sometimes ya feel like a nut- sometimes you don't. I have NEVER been diagnosed with ALS, but I did have a "suspect MND" and other issues, and continue to be in limboland. That is until July 9th...
  5. sdsyd

    brendapals' update!

    No need to respond! ha. No time to read our replies, probably! You are an amazing woman, mother and wife. Congrats on all of the milestones~!~! Happy belated B-day~! Love, Cindy
  6. sdsyd

    Update on Jim's surgery

    Amazing news! i am so proud of you guys for forging ahead through brick walls to get this surgery done~ I am sorry he is in so much pain, but SO glad he gets to go through rehab and get stronger! Hang in there, keep us posted and we'll keep checkin in and praying for you guys! Love, Cindy
  7. sdsyd

    My Journey

    Lorie-You are such a brave and confident person! Best wishes and prayers as you look this thing square in the face. Lots of people pulling for you- Love, Cindy
  8. sdsyd

    Remember We are people facing ALS

    I just have to chime in here, too. I agree with the sentiments posted here. I am still in undiagnosed limbo. I recall all too well the PANIC I felt when my neuro suggested it could be the onset of MND. For along time, I just lingered and read, until I felt it was safe to share my journey...
  9. sdsyd

    Happy Fathers Day!

    Just wanted to wish all the great Dads out there Happy Fathers Day. I hope your day is enjoyable and you feel surrounded by love and APPRECIATION! Love, Cindy
  10. sdsyd

    Happy Birthday, Moderator Al !

    Happy happy happy birthday to you!
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