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  1. M

    My brother

    Roisin, I have just seen your messages, it has been months, maybe close to a year since Ive even thought about looking on the forum, its weird, since my mum dies of als I have kinda blocked it out. Dont get me wrong, I still donate to the association and all that, but its like I pretend its not...
  2. M

    general update on how everyone is?

    Hiya Roisin, sorry Im not on very much. Having a small baby is a full time job! My mam used to say she was preparing me for a baby while I was looking after her, but trust me, a baby is much more tiring! Also I had more help in family and friends as they all loved my mam so much they were...
  3. M

    I heard him play again!

    Netty, Im so sorry for the loss of your best friend, as you have put it. I havent been on for a while, soo sorry for the delay. I hope you have been ok in the last few weeks, and I hope you have had some comfort in friends and family. You have been an inspiriation as a cals, in the way you...
  4. M

    Baby News!

    Hi all, Just thought Id put in a quick post to let you all know that my Beautiful Baby Son arrived. He came 3 weeks ago, and is an absolute Angel. I was in the Uk at the time, with my partner and were on our way back when it happened, so my son was born in Wales. The same place as myself and my...
  5. M

    Dementia in MND

    Hi Geithling, Your mother sounds exactly as my own mum did some time ago. My mum has passed but every now and then i try and log on and see if I can offer any advice. Mum turned away the Ot and any community help, to be honest I had to tell some little white lies. I told her that the doctors...
  6. M

    It is ALS

    Sounds like you already made the decision to put things on hold to look after your mum. I did too when we got the diagnosed. I was due to move to the Uk, where my partner lives. I never made the move and became full time carer instead. We had plans to marry and have kids and all plans went on...
  7. M

    people witth bulbar?

    Hi Roisin, Just read about your mums fall. Was she going from Kneeling to standing? Im not sure in the post?Maybe it wasnt weakness in her legs but weakness in general or her arms or back. My mums weakness started in her hands, they were worst affected. Her speech was slurred in the last few...
  8. M

    It is ALS

    Hi Coleen, obviously there are a many different neurological disorders and I couldnt say if this was als or something less serious. I wouldnt even try. My mum started off with just weakness in her right hand and fingers, unable to open jars and bottles etc, this went on for months and months...
  9. M

    pain

    Cynth, my mum experienced pain, and the doctors did prescribe painkillers at first. She would have pains in her arms and her legs, sometimes they were incredibly sore. After a while the painkillers were not doing as much and they gave her these patches called bu- trans, they have a tiny dose of...
  10. M

    It is ALS

    karry and Dana, your stories have touched me. 4 weeks ago and a day, my mother died from als. She was diagnosed 17months earlier. Up until then she was working 40hours a week in Dublin International Airport (a busy job), driving everyday, socialising every weekend and on holidays quite a lot! My...
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