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  1. BethU

    why don't researchers care about toxins?

    Not that I am one of the amalgam nuts ... to the contrary, I think most of that is a bunch of hooey ... but it is my understanding that where science currently stands on the cause of ALS is that it is three genes behaving badly along with some environmental triggers. I signed the forms to...
  2. BethU

    Brendapals

    Brenda hasn't been online since mid-December. Has anybody heard from her? Hope she is OK. Brenda ... if you're out there, drop us a note and let us know you're all right. We miss you.
  3. BethU

    Get Well Wishes for Stu

    Let's everybody send good vibes to our ALS Guardian Angel, Stu Millheiser, who will be undergoing back surgery this week. Hope you're back on your feet and flapping those wings again real soon, Stu!
  4. BethU

    Funding for ALS Registry Increased

    Just got this e-mail from ALSA. (Why can't the US go in with this with Canada, Aus, NZ and the UK and get a REAL representative database going? Anyway ... this is a good start!) ------------------------------------------------------------------------ A few minutes ago, the House of...
  5. BethU

    New style BiPap mask

    This is new to me, at least. Just got it and haven't tried it ... but it's a full-face mask that you can wear glasses with. No forehead brace. It fits from about the bridge of the nose to under the chin. There are no straps over the top of the head ... just two straps going to the back of the...
  6. BethU

    ALS good news? Doctor urging trache?!

    Had an interesting appointment at my pulmonologist today. He asked me if I have considered a trache, and since reading Joel's information about it, I didn't give my automatic "Hell, no!" I said, "I've thought about it, but haven't decided yet." He said, "Well, think about it. There's some good...
  7. BethU

    Wake-up Calls

    Well, it's rant 'n' rave time again. Have had a series of wake-up calls, and have finally realized that denial is not a good coping mechanism for long. Especially with ALS. My "I can manage" mentality came to a screeching halt about 3 weeks ago, my last trip to the ER, when my LightWriter...
  8. BethU

    P. Daddy and M.T. Pockets

    Hey, Pat and Capt. Al, Hope you guys are both comfortable, and hanging in there. I'm thinking of you both, and keep you in my prayers.
  9. BethU

    LOST Horizon

    The sun first lights the highest peak in this part of the Himalayas five minutes before the lower peaks start to turn rosy with dawn and an hour before the shafts of morning light touch the shadowed valley below. In a sacred cave in the highest peak, the Great Mystic Rhm Bo opens his...
  10. BethU

    Dibs on Forum Follies this weekend ...

    ... although Peter will be a tough act to follow. Look for Lost Horizons on a forum near you, hopefully Friday night, God willing and the creeks don't rise.
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