Not that I am one of the amalgam nuts ... to the contrary, I think most of that is a bunch of hooey ... but it is my understanding that where science currently stands on the cause of ALS is that it is three genes behaving badly along with some environmental triggers.
I signed the forms to...
Brenda hasn't been online since mid-December. Has anybody heard from her? Hope she is OK.
Brenda ... if you're out there, drop us a note and let us know you're all right. We miss you.
Let's everybody send good vibes to our ALS Guardian Angel, Stu Millheiser, who will be undergoing back surgery this week.
Hope you're back on your feet and flapping those wings again real soon, Stu!
Just got this e-mail from ALSA.
(Why can't the US go in with this with Canada, Aus, NZ and the UK and get a REAL representative database going? Anyway ... this is a good start!)
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A few minutes ago, the House of...
This is new to me, at least. Just got it and haven't tried it ... but it's a full-face mask that you can wear glasses with. No forehead brace.
It fits from about the bridge of the nose to under the chin. There are no straps over the top of the head ... just two straps going to the back of the...
Had an interesting appointment at my pulmonologist today. He asked me if I have considered a trache, and since reading Joel's information about it, I didn't give my automatic "Hell, no!" I said, "I've thought about it, but haven't decided yet."
He said, "Well, think about it. There's some good...
Well, it's rant 'n' rave time again. Have had a series of wake-up calls, and have finally realized that denial is not a good coping mechanism for long. Especially with ALS.
My "I can manage" mentality came to a screeching halt about 3 weeks ago, my last trip to the ER, when my LightWriter...
abuse
age
als
assisted living
back
book
caregiver
caregivers
coping
dementia
denial
dynavox
feeding
free
grant
hope
hours
meds
mentality
nurses
power
power chair
rant
suction
trip
voice
wheelchair
The sun first lights the highest peak in this part of the Himalayas five minutes before the lower peaks start to turn rosy with dawn and an hour before the shafts of morning light touch the shadowed valley below.
In a sacred cave in the highest peak, the Great Mystic Rhm Bo opens his...
... although Peter will be a tough act to follow.
Look for Lost Horizons on a forum near you, hopefully Friday night, God willing and the creeks don't rise.