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trach,vent,pegs My husband was diagnosed this april '08 and he said no to everything (trach, peg, bipap). As things are progressing quickly I hope he will change his mind. I know what a benefit these medical procedures are as I am also a pediatric nurse on a respiratory floor. So he would...

ALS site for children Great site! I was having a problem with communication and even if they don't talk to me right now at least they can get some answers here. Thanks again, kim

Robinul Hi, my name is Kim, my husband age 42 was recently diagnosed w/ALS and we live in Corpus Christi, Tx not too far from yall. I am also a pediatric nurse at Driscoll Children's Hospital here and I take care of trach/respiratory patients. Yes Robinul is the medication we use to help...

:confused:I was wondering how many PALS had been diagnosed after having back surgery and if there was a possibility of a correalation between them? My husband had a bulging/herniated disc repair(laminectomy & discectomy) last year in Jan and started with symptoms a year later.

thanks bob Thanks Bob and those who replied I truly appreciate it. Bob it almost sounded as if my husband had written that! I even read it out loud to him right away. It fives hime hope to hear that people do survive longer than the 3-5yrs that textbooks/internet searches give as an average...

thanks Thanks to all who replied, it's always encouraging to read other's emails. It's been 2 mons now since we were first diagnosed and just when I feel like I might have things under control I start to fee helpless and lost again. Just last night l asked my husband if he felt like we were in...

Well we're officially diagnosed it's definitely ALS. Every lab and test Dr. Jackson, in San Antonio, ran came back negative (no Lymes disease, no poisoning-metals, no aids,hiv,syphilus, no other neuromuscular disease etc.) We met alot of wonderful people on wed at the ALS clinic(kids went...

I posted earlier when we found out my husband had ALS but the Dr. here in Corpus Christi did not rule out everything before telling him (alone in his office!) that he had this terminal illness so we went to San Antonio to see the ALS specialist. Well we're officially diagnosed it's definitely...

feel the same Kelly, My husband was just diagnosed in april of this year and we felt our world quickly crumble. Our dreams of moving to the country(on land we already bought) have been put on hold. Having lunch with my sister one day she said"I know everything happens for a reason, but I...

-------------------------------------------------------------------------------- Thanks for letting me know how your visits to SA clinics are. My good news is that our appointment was moved up from July 11 to May 30! So we go in 2 weeks instead of 2 months. I told my husband we should be...