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  1. L

    Neck muscles..what to expect

    I was wondering if I could get some candid information on what to expect next. My father was diagnosed 10 years ago, he has done remarkably well and progressed relatively slowly. His speech is very poor and he can no longer walk or lift his arms so he must be fed and cared for on all levels...
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    Feeling hopeless/helpless/useless

    It is so upsetting reading these posts sometimes. I can't believe how unbelievably awful and unfair this disease is. I know we are only supposed to get what we can handle, but sometimes it is so overwhelming. Whimsy, I am so sorry for what you are going through and all of the other caregivers...
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    Mom's new diagnosis

    I am not sure how to respond because everyone is different. My father is now in year 10 of this so obviously it is progressing slowly. His was a bulbar onset affecting his speech first. We tried everything early on. He did try the Rilutek and another drug (can't even remember what it was...
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    Feel so guilty...please help!

    It makes me so sad to know that others are in the same situation as my mother. The one thing I have to say is please do not ever feel guilty about your feelings or talking about them. As unfair as this illness is on the person who has it, I almost feel it is twice as unfair on the caregiver...
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    caregivers..need some advice

    Kelly, how old are your children? I am so sorry you have to deal with this at this stage in your life, it's so unfair. What is an incumbent trike? Cranberry is such a nice area, but it's been so built up the past few years. Not sure the last time you have been in town, but traffic is...
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    caregivers..need some advice

    Kelly, I am so sorry about your husband, and for ALL of you out there who are dealing with this as a spouse, relative or loved one. There really are no words to describe the emotional rollercoaster of coping with this disease. My heart especially breaks when I hear about young people. 41 is...
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    caregivers..need some advice

    Thank you very much for the suggestions. They have actually had hospice in the past year and 1/2, but had to temporarily cancel 7 months ago. Their insurance will not pay for a new power wheelchair while they are on hospice?! So - they went off of hospice to tried to get a new wheelchair and...
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    caregivers..need some advice

    Hi, I am new to this board and I am desperately searching for some advice as to how to help my mother. My father was diagnosed with ALS in 1998. My mother is his caregiver and it is getting to a point where it is is physically and emotionally taking it's toll on her to the point where I am...
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