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Hello~ I have been debating about posting an update or not. I dont have a high comfort level about it. I have had people pm me or ask how my appt went. I also, know how it feels to be un diagnosed and wonder what ever happen to those that had simliar sx and have not posted in a year and how...

Well, I will try not to make this to long but I have a bit to say and those that know me, know that I can get a little long winded..... So, Ihad my repeat emg and saw the other head nuero at als universty (whom has been in als for 30yrs). He did the emg himself and it was perfectly CLEAN...

I was wondering if anyone here has had a hyper gag reflex and then lost it? Last Winter I had a hyper gag and my neuro said that was good. Well, I have noticed that in the last few months that it is now hypo or lost. I have no speaking issue's or eating or swallowing that I can tell. I went to...

Hi Guys! Well, most of you know my loooong story so I wont bore any with details. I am seeking your wonderful advice about my next step in this process. I have made an appt with the cleavland clinic (about 4hrs away) for Feb.4th. I am due to have a repeat emg with my current als nuero...

Hi all! I just wanted to post something funny with my boys to lighten the mood. We were talking about getting older and my 4 yr old said that he wanted to marry me when he grew up! ok, can that be any more sweet... Then my 7 yr old said " I am not going to marry you, I dont want to marry an...

HI all, I have been 'trying' to keep a low profile and not over stress or annoy anyone! I am trying to do the best I can and keep postive per my tests. Anyway, I finally got the emg/ncv and biopsy report to read myself since my als spec. wont tell me things. The emg was normal all across and...

Hi all, Maybe I am a little slow, but I dont understand the difference b/w the two. I think that I was having spams or something yesturday and today. It has me worried. I always felt assured becasue I never had any cramping or spasms, just twitching and weakness. Well, yesturday my left thigh...

Hey all, For those of you that have followed any of my postings, or ramblings I should say, I wanted to tell you what I did last night. (dont have diagnosed for anyone doesnt know me) It is not a big deal to some but I was able to cook dinner and hold Grace! NOt for long or the whole time...

Well, I went to the evaluation for my therapy. It did not go well and left me upset.(what a surprise). She did alot of muscle strenght testing, not the squeeze my fingers and you are fine test. First she tested my grip strength with a machine that measures it. Most people she said are above 70...

I dont know where to start or how I feel about all this. BUt I am sure that many on here can relate. Well, I went to the neuro and I am ashamed to say that when she walked into the room I bust out into tears from nervous anticipation of the results. (this did not help increase her opinion of my...