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  1. C

    Loss of Voice

    My pals has had increasing bulbar symptoms for the last 6-8 months. He has been very hard to understand lately, but on thursday, he got hoarse and then woke up friday with no voice. Has anybody else lost their voice "overnight" like this? We have a dynavox on order, but it doesn't seem right...
  2. C

    Change in Rate of Progression

    Hi Everybody I haven't posted in some time, but have really appreciated the helpful posts and support posted by others. I have a question regarding rate of progression. I know that everybody is different, but was looking for some direction from those whose progression started slow and then...
  3. C

    New to this and need Advice

    Hi My husband was diagnosed in September 2006, and we have been very lucky that his progression has been very slow. I feel guilty looking for support knowing that many people have such quick progressions. However, I would like to know how to deal with what seems like a long slow death by inches...
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