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Mayo Clinic has the same approach as UCSF, they want me to send them all documentation and then they will take the decision whether they want to see me or not. I’m back to the square one.. feeling so helpless

@Wobblyheart good luck with EMG!

It seems not realistic to get an appointment here. I scheduled a call with Mayo Clinic to schedule an appointment there, at least they don’t need referrals..

At least I could sent it to als clinic so there would be a good reason to see me.

Quick update from me. UCSF ALS recommended me keep follow ups with local neuro ( rejected me). They also said that if I developed more symptoms my pcp should send notes to them. I checked notes from last neuro appointment and found out that even tho he admitted my atrophy, he mentioned in his...

@Cmc2007 agreed!

And doctors tell like: forget about ALS, you don't have it. How they can be that sure.. Honestly, this is so frustrating..

My neurologists don't want to send referral since they think that everything is okay even tho they can't explain my atrophy. Plus they messed up with appointment notes. My pcp was the only one who agreed to send referral there but my neuro said they would reject me since I had clean EMG.. They...

@Cmc2007 is it worth it to go to Mayo? I have Stanford and UCSF (With ALS clinic) but it’s incredibly hard to get an appointment there. They request all the documentation from doctors and referral. .

@Cmc2007 agreed. My doc said that if Emg had done on atrophied muscle it should show something in my case. But nothing was there.