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  1. P

    Bipap and appetite questions

    Thank you again. The doctor suggested the Trilogy and didn't mention Astral. should I ask about that instead? I realize we never sent the settings. I will follow up on that as well.
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    Bipap and appetite questions

    Hello Laurie, Thank you again for your guidance. We are now hearing that she should be on Trilogy instead of a bipap. Are you familiar with that?
  3. P

    Bipap and appetite questions

    Hello, my mother is recently diagnosed and we have many questions. She is having a very hard time adjusting to the bipap and can't seem to stand it to be on more than 18 mins. We are wondering if anyone uses the nose only mask and if so if that might help her adjust? Breathing is already...
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    Initial reaction to Relyvrio

    Thank you all for your responses! I did reach out to Amylyx but nothing helpful so far. I was not familiar with Tudca but will look into it. So helpful to have this feedback.
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    Initial reaction to Relyvrio

    Hello, my mother was recently diagnosed with ALS and prescribed Relyvrio. The time she took it she was immediately nauseous for 45 mins and then explosive diarrhea started. It was awful and now she won't take it. The doctor first said not to bother taking it and then when pushed said to try it...
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