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  1. poet1973

    B12 shots

    My doctor is ordering b12 shots twice a week. Wondering what these are for?
  2. poet1973

    Another rant

    Three words that I hate now, " Are you ok?". I know that people are not trying to be inconsiderate, they're just genuinely concerned. However sometimes I just want to scream. Because no i'm not ok, can't do the things i used to do!! I dont want to seem ungateful, because thats not the case! I...
  3. poet1973

    Message banking

    My tobii rep told me there are apps that i could use with my samsung phone to bank messages but having trouble finding one. Any suggestions
  4. poet1973

    Hoyer lift

    The ALS association sent me electric hoyer lift but its huge and is giving us trouble maneuvering through our small house. Especially our small hallway. Any advice. Thank you
  5. poet1973

    Another rant

    This damn disease! I was supposed to go to pt this morning however, haven't had abm in week and now I can't stop!!!!😩🤪 It would be ok if I could go by myself but that ain't happening. My legs and left arm have gotten so weak that I can't get up and down myself. It frustrates me that I can't do...
  6. poet1973

    Another rant

    This damn disease! I was supposed to go to pt this morning however, haven't had abm in week and now I can't stop!!!!😩🤪 It would be ok if I could go by myself but that ain't happening. My legs and left arm have gotten so weak that I can't get up and down myself. It frustrates me that I can't do...
  7. poet1973

    Appetite

    I'm currently on riluzole, radicava and relyvrio. However I don't have an appetite. I eat because I know I must and try to supplement with protein shakes. Any suggestions on how to boost my appetite?
  8. poet1973

    Relyvrio

    I received my relyvrio today . Was wondering when I should start taking the instructions are a little hazy. Is it better to take it in the mornings.
  9. poet1973

    Medicare drug coverage

    I live in Mississippi I am 49 years old am on Medicare part A and part B however I need drug coverage for my meds. I have had a lot of people tell me not to get the advantage plans. Just wanting advice on what I needed to get?!
  10. poet1973

    Just another rant

    Why is life so difficult? You think your past most of the hurdles and then the universe throws another wrench in the gears! Wife and I thought we were doing pretty good, kids are grown and thought we weren't going to have to worry about them. Thought that we were fixing to be to where we could...
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