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  • Users: RandiLynne
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  1. R

    Hospital bed

    Pals hospital bed was delivered Wednesday, and I look at it wondering how in the world will he be able to sleep, be comfortable, and most importantly, not fall out. He has to sit in upright position due to tube feedings and severe shoulder pain if laying flat. The guard rails don’t serve any...
  2. R

    Third-party eval to get vehicle

    We received our vehicle grant approval and signed certificate, and took to the place we found an already converted vehicle. He told me that after they send it to Fayetteville, there will be an appt at a local physician, he didn’t know who, for an independent eval. We were told initially all we...
  3. R

    It feels like we are wasting precious time

    Posted this in caregivers thread, was suggested to put it out here.
  4. R

    It feels like we are wasting precious time

    How do you make it possible to quit working, so you can stay home with them before they lose all ability/mobility? I hate to think we are wasting the good days with me working and him home and all we’ll have left are the bad.
  5. R

    How do we survive this?

    My husband of 32 years was diagnosed with PLS/early ALS on March 10th. I’m not sure what has happened but in just this last week he seems to be going down hill very quickly. When we were at Mayo he didn’t have any speech or eating issues and now his speech has slowed significantly, he says his...
  6. R

    Concerned about husband

    Hello, and thank you for taking your time to help those of us fearing this disease, whether for ourselves or a loved one. I will try to keep this brief as possible. My husband is 56 years old and started experiencing fasciculations in his left arm, approximately 5-6 months ago, now on the right...
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