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  1. R

    Hospital bed

    Pals hospital bed was delivered Wednesday, and I look at it wondering how in the world will he be able to sleep, be comfortable, and most importantly, not fall out. He has to sit in upright position due to tube feedings and severe shoulder pain if laying flat. The guard rails don’t serve any...
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    A2BA1B1C-8276-4297-A1BC-5FB6749748FF.jpeg

  3. R

    Third-party eval to get vehicle

    My pals is a veteran, and the van is part of what the VA pays for.
  4. R

    Third-party eval to get vehicle

    Hi Nikki. He is the salesman at United Access. Said he is sending the 4502 and the one for the adaptations (can’t remember the form number), along with an invoice to the Fayetteville Arkansas VA where they handle the vehicles. I could understand if Scott was going to be driving, but that isn’t...
  5. R

    Third-party eval to get vehicle

    We received our vehicle grant approval and signed certificate, and took to the place we found an already converted vehicle. He told me that after they send it to Fayetteville, there will be an appt at a local physician, he didn’t know who, for an independent eval. We were told initially all we...
  6. R

    It feels like we are wasting precious time

    My therapist told me I’m very good at finding solutions, so I need to make sure I don’t do something because I thinks it’s what’s good for him but in reality it’s to make myself feel better. I question if that is what I’m doing.
  7. R

    It feels like we are wasting precious time

    Posted this in caregivers thread, was suggested to put it out here.
  8. R

    It feels like we are wasting precious time

    How do you make it possible to quit working, so you can stay home with them before they lose all ability/mobility? I hate to think we are wasting the good days with me working and him home and all we’ll have left are the bad.
  9. R

    How do we survive this?

    Thank you, Laurie. I feel like I’m walking on egg shells, not wanting to say or do the wrong thing. I’m trying to be ok, but I can’t be ok all the time. What does rapid progression look like. In the week since diagnosis, he has a lot of symptoms now that he didn’t have when testing was being...
  10. R

    How do we survive this?

    We got the ALS assoc material today. I’ve read through some of it.
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