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Hello Everyone - I posted a few times in the winter soon after my best friend was diagnosed. I’ve been back here to find info many times - which was very helpful! - but haven’t posted in a while. The quick update: P. has lost the use of one arm completely; can still walk, but barely (wheelchair...

Hello everyone. I posted here a few months ago about my best friend who was diagnosed with ALS in January (limb onset, C9 positive). He is handling it well but, unfortunately, the progression is more rapid than we had hoped. He has now completely lost the use of his right arm, is having great...

My PALS (who is my best friend) called me today totally distraught. He got an email that said SSA denied his application for SSDI. Neither of us can figure out what happened, because as far as he knows he never even submitted it! He was working on it online but was not done. Maybe he hit...

I posted for the first time about 6 weeks ago, when my best friend received his diagnosis. He is a central person in my life and like family to me (I am single), so this has been pretty devastating news for me as well as for him. To recap, his symptoms started about 2 1/2 years ago when he...

I’m new to this forum as my best friend was just diagnosed a few days ago. I don’t even know if I could technically be considered a caregiver now as he is still very independent. But I am committed to helping him through this all the way, and have already started helping him with research...