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    PALS Having a Harder Time Breathing - Would Love Your Thoughts

    This is all super helpful - thanks so much! And thanks very much to lgelb for the offer to help with settings. It sounds like this is maybe not as dire as he is interpreting it (in terms of his ability to continue to get out and enjoy life) - which is very encouraging. On the upcoming FVC...
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    Last weeks

    What a sweet picture!
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    PALS Having a Harder Time Breathing - Would Love Your Thoughts

    Hello Everyone - I posted a few times in the winter soon after my best friend was diagnosed. I’ve been back here to find info many times - which was very helpful! - but haven’t posted in a while. The quick update: P. has lost the use of one arm completely; can still walk, but barely (wheelchair...
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    The Importance of Early Diagnosis and Treatment

    Tom’s Wife: I’m very sorry for your loss. And, I related to your story about the screwdriver. My PALs saga started at a restaurant where he had been served steak, and for some reason was having trouble cutting it. Was the steak too tough? Knife not sharp enough? It would never in a million years...
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    Two Friends Diagnosed with ALS at about the same time??

    Hello everyone. I posted here a few months ago about my best friend who was diagnosed with ALS in January (limb onset, C9 positive). He is handling it well but, unfortunately, the progression is more rapid than we had hoped. He has now completely lost the use of his right arm, is having great...
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    Timothy

    Kelli, just wanted to say I am thinking of you and am very sorry for your loss.
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    Ssdi

    My PALS (who is my best friend) called me today totally distraught. He got an email that said SSA denied his application for SSDI. Neither of us can figure out what happened, because as far as he knows he never even submitted it! He was working on it online but was not done. Maybe he hit...
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    Checking in (my PALS was diagnosed about 6 weeks ago)

    Thanks so much to all for your replies, and my apologies for my delay in replying in turn - I was traveling. So, to respond: =He is not a veteran unfortunately —He is on Medicaid right now - that is how he is getting his health care. He is in the process of applying for SSDI, and when he gets...
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    Checking in (my PALS was diagnosed about 6 weeks ago)

    That is super helpful advice, Kim. Thanks so much!
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    Checking in (my PALS was diagnosed about 6 weeks ago)

    Thanks so much! All three children are in their 20s and one just got married, and I believe the newly-married couple wants children. So yes, a lot to think about.
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