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Weak neck muscles My neck muscles have weakened to the point that I use soft brace if sitting up right for very long. The worse thing is when care-givers are careless in transportation or trannsfer & let it flop backwardss! Panic --I can"t breathe. Used to grab hair to pull neck back...

I won't be eating or talking This is my 2nd or 3rd Thanksgiving with ALS (symptoms in04, but diagnosed Mar 05). It is different when the Grandmother of the clan can't eat or talk, but I get to be hostess. I haved prayed that God will fill our hearts & home with joy and praise & draw us closer...

Danny, false hope may be better than no hope Danny I'm not into Eric Edney, but if it encouraged your Mom in any way, good for you in trying to help her. I don't criticize what pathways any one takes. I know of people who went to China for stem cell treatment; it didn't work, but I don't blame...

Bulbar ALS I was having slurred speech; went to nuerologist who did emg & one week later, I got the diagnosis. My tongue quivered like a bowl of jello. If I sneezed suddenly, would bite right through it. (diagnosed Mar 05). We went to Denver for 2nd opinion, but he didn't even run tests...

Husband hears cries in the night For weeks Billy kept running to look in on me, thought he heard me calling him. I figured it was anxiety, so relented & let him sleep with me. Then I started hearing strange noises in the night. My startle reflex is on overdrive & whenever the rhino would...

Drug Cocktail I found s study from Canada that a cocktail of rilutek, minocycline & nimotop together were more effective than either by itself.. I still here, but hard to say how I would be without treatment. My insura nce pays for it, so I will continue. Time for bed, love Mollye

Go for it Holly! tRUE LOVE IS RARE & PRECIOUS. We have been married 47 yrs. & my diagnosed has only deepened our passion for each other. I'll share more about that latter. Bedtime now. Best wishes, Love, Mollye

Finances permitting, do the things you were going to do All of a sudden our "someday" list becomes do it now. Don't panic; all the other stuff will get done. Resolve to live & love one day at a time. My husband & I had a wonderful trip to Yellowstone, creating memories that we still draw on...

Attitude better I knew I had to get over the anger. I'm better today. Can lie quietly while he feeds me a can of pulmonaid through tube then goes to enjoy crabmeat au gratin. Even let sitter stay last night without pitching fit. (When u can't talk, fit consists of writing large words on...

From simple procedure to emergency surgery... Maybe I shouldn't tell you PALS this, but you asked how it went. Checked in Wed. to have tube put in, to go home next day. Very eminent, experienced gastro-entorologist did surgery. Woke up in excruciating pain. Said probably leaked air or...