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  1. chaoticjane

    Anxiety ridden and scared that I have ALS

    Update on things: My twitching has pretty much become widespread throughout my body. Especially my legs and primarily staying in the bottom of my feet and my toes. My thumb is not twitching as much. I still have no weakness present. Also I was wondering as I was reading through the forums...
  2. chaoticjane

    Anxiety ridden and scared that I have ALS

    Thank you so much! I’m involved with a pt program right now and I’ve been involved with a geneticist previous when I wanted to donate eggs. Luckily no other genes were flagged besides EDS. I go for a ECG next week
  3. chaoticjane

    Anxiety ridden and scared that I have ALS

    Hello, thank you for taking the time to read this! It means a lot! I’m a 23 F that has Ehler Danlos Syndrome and I’m scared about what’s going on. December of 2022 I started getting horrible pain from my elbows going down into my arms followed with fatigue. One day I woke up and could turn my...
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